Sorry I shouldn’t have asked that I’m assuming that you’re on that other plan that you and your doctor had?

I know my doctor reminds me that the medicine will stop working at some point.

Gotta love the optimism!!

@tinae, last year, roughly three and a half years after the brain surgery, my doctor detected renewed cancer activity in the area of resection. Last February (2024), I had one more round of targeted radiation, which worked. I'm still cancer-free.

However, roughly 9 months later, I started to have trouble with my right foot wanting to rotate, so I was walking on the outside edge. The following brain MRI revealed necrosis -- cell death. As those cells died, they leaked fluid, which applied pressure to the nerves in the area and a renewal of symptoms similar to what I'd experienced with the cyst: loss of fine motor control in my right arm, general tightness in my right shoulder/back, an inability to lift my right leg, and drop foot on the right side.

I started taking daily Dexamethasone on Dec. 5, 2024, and began getting infusions of Avastin every other week. The Dex has reduced the swelling, and the Avastin has reduced the pooled blood in my brain. I'm still working through the nerve damage and resulting biomechanical dysfunction, i.e., I have problems walking.

Nerves regrow at a rate of 1mm per month, so restoring my walking gait will take some time. I'm working with a personal trainer to train my body to move as efficiently as possible.