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@naturegirl5

@jneil Welcome to Mayo Clinic Connect. Of course you are stressed. I tried to act "zen" at work but inside I did not feel that way at all. You had a biopsy and heard the word "cancer". When I saw my doctor after diagnosis I got lost on my way home on a familiar route. I suddenly realized I was in a neighborhood I'd never been in before. I was just too stunned, stressed, and shocked to navigate. I live in a small enough area that it wasn't too difficult to get myself back on a familiar route but it certainly was a wake-up call about how I was feeling at the time.

I am a volunteer mentor and not a medical professional. I was diagnosed with endometrioid adenocarcinoma FIGO Grade 1 in 2019. Stages are diagnosed after surgery so perhaps the 1 you refer to is FIGO Grade 1?

I was told by my gyn-oncologist that endometroid adenocarcinoma is the most common of the uterine cancers and is not generally aggressive. Now, that doesn't mean that anyone should wait too long before their next consult. Your next consultation is a few weeks away - can you call the office of the medical provider, tell the scheduler who answers the phone what your diagnosis is and ask if there are any earlier appointments? You can also ask to be a "wait list" in case of cancellations.

Here is some reading that will explain your diagnosis and FIGO Grades. When I have a medical appointment I write my questions down on paper and take those with me. I also have someone with me during my appointments which is usually my husband. We both take notes and with his "set of ears" during an appointment in which I feel very anxious he will hear what I did not thoroughly process.

Mayo Clinic Endometrial Cancer:

-- https://www.mayoclinic.org/diseases-conditions/endometrial-cancer/symptoms-causes/syc-20352461

American Cancer Society-Endometrial Cancer Staging:

-- https://www.cancer.org/cancer/types/endometrial-cancer/detection-diagnosis-staging/staging.html

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Replies to "@jneil Welcome to Mayo Clinic Connect. Of course you are stressed. I tried to act "zen"..."

Thank you, so much - very grateful. I believe half the 'anx' is the waiting and wondering and certainly anticipating the unfamiliar, unknown, and disbelief. It will be really nice to sit down with the Doctor and have more clarity and direction.

@val64 @jneil @naturegirl5
The waiting is SO hard, and there are so many ups and down. For me, that is the hardest part. I had some post-menopausal bleeding, starting in August. An ultrasound diagnosed was endometrial hyperplasia/endometrial carcinoma. I was terrified. I saw a gynecologist, who disagreed with the diagnosis because none of the traditional criteria fit me (polycystic ovary syndrome, infertility, obesity, etc.). He was convinced it was a polyp. I had a D&C and hysteroscopy in December, and even after the surgery, he was convinced it was a polyp or fibroid that he sampled. A week later, I was diagnosed with grade 3 endometrial adenocarcinoma. Within 2 weeks I had an appointment with a specialist, and within 2 weeks of that a total hysterectomy with fallopian tubes and ovaries removed, as well as lymph node sampling. My 6 week follow is next week, and I am so unsettled about the results. I have seen the results ahead of time, and there are good parts and not as good parts (only 11% spread into myometrial wall, clean margins, not in lymph nodes, but substantial lymphovascular invasion). DNA testing came back showing 3 mutations, including one POLE, with a high tumor mutation burden. I shouldn't be trying to figure this out myself, but 6 weeks is so long to wait and worry. I am so stressed about what follow-up treatment will be, if anything, because I keep reading contradictory things. I can't wait to just to know once and for all. And to stop waiting. But I will also say that before the grade 3 diagnosis, I was told that grade 1 is VERY treatable and so slow moving that a little bit of a wait time will not impact it all. It is almost always curable!