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DiscussionIs timing between diagnosis and hysterectomy critical?
Gynecologic Cancers | Last Active: 4 days ago | Replies (9)Comment receiving replies
Replies to "@jneil Welcome to Mayo Clinic Connect. Of course you are stressed. I tried to act "zen"..."
@val64 @jneil @naturegirl5
The waiting is SO hard, and there are so many ups and down. For me, that is the hardest part. I had some post-menopausal bleeding, starting in August. An ultrasound diagnosed was endometrial hyperplasia/endometrial carcinoma. I was terrified. I saw a gynecologist, who disagreed with the diagnosis because none of the traditional criteria fit me (polycystic ovary syndrome, infertility, obesity, etc.). He was convinced it was a polyp. I had a D&C and hysteroscopy in December, and even after the surgery, he was convinced it was a polyp or fibroid that he sampled. A week later, I was diagnosed with grade 3 endometrial adenocarcinoma. Within 2 weeks I had an appointment with a specialist, and within 2 weeks of that a total hysterectomy with fallopian tubes and ovaries removed, as well as lymph node sampling. My 6 week follow is next week, and I am so unsettled about the results. I have seen the results ahead of time, and there are good parts and not as good parts (only 11% spread into myometrial wall, clean margins, not in lymph nodes, but substantial lymphovascular invasion). DNA testing came back showing 3 mutations, including one POLE, with a high tumor mutation burden. I shouldn't be trying to figure this out myself, but 6 weeks is so long to wait and worry. I am so stressed about what follow-up treatment will be, if anything, because I keep reading contradictory things. I can't wait to just to know once and for all. And to stop waiting. But I will also say that before the grade 3 diagnosis, I was told that grade 1 is VERY treatable and so slow moving that a little bit of a wait time will not impact it all. It is almost always curable!
Thank you, so much - very grateful. I believe half the 'anx' is the waiting and wondering and certainly anticipating the unfamiliar, unknown, and disbelief. It will be really nice to sit down with the Doctor and have more clarity and direction.