← Return to Emotional Roller Coaster and PMR
DiscussionEmotional Roller Coaster and PMR
Polymyalgia Rheumatica (PMR) | Last Active: 4 days ago | Replies (14)Comment receiving replies
Replies to "Thank you all for sharing your stories. I am new to this journey and just trying..."
@cheraloha welcome to the PMR journey - it is never a dull moment - but there will be days and weeks when you wish you could change trains or planes or spaceships. You did not mention how much prednisone you are on, but if it is helping you might speak to your doctor or write them a note if you use an electronic portal about upping your dose some. My understanding is if you require more than 20mg a day then it is worth considering that there is something else at play. I had to wait to see my rheumy and my PCP offered to start me on 5mg and go up 1 mg per every 2 weeks to see what dosage was the smallest dosage that worked for me. I did not accept the offer. In retrospect I wish I had. My Rheumy wanted me to start at 40mg/day and I turned that down flat. Long story but I did finally get treated for the PMR. I am now dealing with several other problems associated with my adverse reaction, which was 6, yes 6, years ago.