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Does anyone use inhalation Tobramycin (Tobi)

MAC & Bronchiectasis | Last Active: 5 days ago | Replies (21)

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@1fancydancear

This is my 3rd time for Pseudomonas. I am also on 300 mg daily but for 14 days. Then we retest after a week or so and either I am done or I re-start. It has always cleared it after one round of 14 days before. Just got over some weird virus that turned into Pneumonia. The Pneumonia triggered the Pseudomonas. Been down flat on my back for the last 7 days but sick for 24 days. When this is over, we start re-testing for MAC (had one positive culture and a negative something , I forget) and then there is the old Stenotrophomas Maltrophilia that we still need to determine if it is really gone or not. Been treated 3 times for this over the last 7 months. The last round of meds lost my hearing for about 3 weeks. It did come back once off the meds. The hearing aid guy said it is as good as it was before the meds. I am very tired and trying hard to regain my energy. It is coming along though but very, very slowly.

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I’m sorry for what you’re going through, I pray we all get Rid of all these infections in our lungs, we don’t give up, dear Lord have mercy on us 🙏🙏🙏