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Newly diagnosed BARRETTS esophagus

Digestive Health | Last Active: 1 day ago | Replies (45)

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@diannesmcneill

I was diagnosed with gastritis w hyperplasia, reflux acid and bile, and Barrett’s 5 months ago. I had the esophagus scope after an emergency Dr recommended the scope. I was looking for answers for my burning mouth, tongue, and tooth and finally after almost 4 years found the answer to my hot burning….reflux! My reflux was silent. I did not know I was having reflux. After diagnosis I was prescribed 40 mg ppi twice daily, sucralfate 10ml before meals and at bedtime and baclofen 5 mg 4 times daily. Have tried 3 different pppi’s , first pantapazole ( ankles and lower leg swelling and pain) , Prilosec started a nuisance cough and nasal drainage for 6 weeks so took steroid dose pack to relief cough. It was like I replaced burning mouth for a nuisance cough! Now I take Nexium OTC two 20mg twice daily. It took about 30 days of treatment for my mouth burning to start improving which was not fast! My biopsy showed small squamocolumnar mucosa with small focus of intestinal metaplasia. I told the specialist something like I realize it’s a small area. He told me it was serious, it was precancer! I too am doing everything that is recommended for reflux regarding elevation of upper body, eating as recommended as to what I eat, size of meals, and when I eat. I only drink bottled water. I also take vitamin D3 and Premier Research Labs Phyto methylate which contains activated B vitamins, folate(5-MTHF) and choline which is suppose to help with Barrett’s improvement. The baclofen I take is suppose to help with the spinster to have fewer reflux events. The pppi’s don’t do anything to help with bile reflux. Pppi’s help acid reflux by stopping the acid pumps in the stomach . The sucralfate liquid coats my stomach and esophagus to protect against bile acid damage to esophagus and stomach. I read everything I can find. I recently reread my esophagus and stomach biopsy report which described the stomach and Barrett’s and listed bile reflux as a cause of gastritis and the Barrett’s so just learning about the bile reflux after 4 months of treatment for acid reflux but thankfully was taking the sucralfate which does protect my stomach and esophagus against bile damage. My family Dr told me Barrett’s can’t be cured but can be improved so I am trying. My specialist retired in Dec. I have an appointment with new specialist In a week. Seems the actual specialist in my area stay busy doing procedures and have their PA deal with patients. I would rather be talking to the doctor specialist about treatments. I will be asking about the new treatments for Barrett’s. I did read where the esophagus scope should be performed 6 months after treatment started to actually see the stomach and Barrett’s tissues to see if improving with treatment. Prayers for all!

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Replies to "I was diagnosed with gastritis w hyperplasia, reflux acid and bile, and Barrett’s 5 months ago...."

I have Barrett’s with high dysplasia, diagnosed in August 2024 via endoscopy. I since have had two endoscopies with ablation, a third next week. It looks like I will be on a three month program for the foreseeable future. Your level of dysplasia should determine how often you are monitored/treated. Once a year seems like the standard for low dysplasia. Three month treatments/monitoring for high dysplasia.