Sorry got interrupted. She should be checked for ALL treatable causes of peripheral neuropathy in case contributing factor's exist. Also checked for other autoimmune disorders such as lupus or rheumatoid arthritis. These can all be checked by blood tests. A condition like those would contribute significantly to her pain and ability to move/walk. Also requires different treatment.
One other drug before/ after plasmapheresis would be Rituxan.
It knocks out anti body forming white blood cells, given IV infusion. Given for lymphoma as well. Can take a long time to work (months).
The fastest, easiest thing right now that works fast (1-7 days). Is an oral steroid. Neurologist could just call it in to pharmacy. It could feel like a miracle in terms of pain.
CIDP is a form of Guillian-Barre Syndrome and there are foundations for GBS/CIDP and others who can help financially for help at home, respite for everyone! You’re dealing with a rare disorder, not well known, severe rapid progression and no help! You might consider Mayo or other specialty clinic if her neurologist is not being aggressive and responsive.
She can get better, probably not 100%, but more comfortable and functional if she gets aggressive treatment. I’m so sorry you are going through this. Autoimmune and neurological disorders are very complex and scary to experience! We’re here for you!