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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 16 hours ago | Replies (6397)Comment receiving replies
Hi, new to the group, I have been experiencing tingling, stabbing pain in my feet up through my ankles for a few years now. Taking Gabapentin, and stop taking all pain medications like Tylenol, Ibuprofen, most of all Naproxen.
I do also take Duloxetine for my sanity and have been told it helps calm the nerves in my feet and hands. I have tried other things like a clinic that I ended up paying out alot of money for no real results, and after going through stimulating my nerves in my feet with foot baths and while running shocks into my feet for up to 30 minutes a day. Also putting on a contraption that also was supposed to reset my nerves by running this for so many minutes a day. I tried their special supplements for 6 months until I ran out and found that I would have to order more supplements monthly that were very expensive, I had to stop with no real results. Also add the diet that I tried to stay on all greens mostly, no processed foods, mostly salads and lots and lots of water. I did pretty good until I couldn't keep that up. At this point I am dealing with pain 24/7 in my feet, ankles and slowly climbing up to my lower calves. I also have pain in my hands mostly fingertips tingling and soreness, I drop things and struggle to just walk around the house. I watch some of these videos like I did just tonight about how the new supplement called Nerve Freedom can give you great results in just 10 to 20 days. And if you continue to use up to 12 months you can get complete results and neuropathy never returns. Neurologists name is Mark Halbert (not exactly sure of the spelling) talks about Okinawa Capsaicin and 3 added ingredients of Curcumin, Alpha Lopic Acid and Root Extract. Has anyone heard about this and had any results if tried? Too long I know I will check back in and keep this shorter. Karen
Replies to "Hi, new to the group, I have been experiencing tingling, stabbing pain in my feet up..."
Hi kpotter62, I'm also new to the group. I'm also 80 years old and dealing with exactly the same thing that you're going through. I have it for maybe over 20 years. Nothing has worked for me and I've tried all the things. Gabapentin different creams duloxetine all other antidepressants. Nothing has worked. Went to neurologist. Put me through tests. Said there's nothing they can do. Well I ended up going to Mayo clinic about 10 days ago and went through a battery of tests. I think they said there was 60 all together. What's blood work and everything? And they said that I do have a few like a small fiber on neuropathy and guess what? There's nothing to do for it. I went there full of Hope. Thought for sure they would be able to cure my feet. My feet are totally dead but I do have sharp shooting pains all the time. I went through the burning and the feeling of bugs crawling up my legs and then my feet felt like I was walking on golf balls or hard rocks. I've had everything you can imagine and now I'm going through where my left leg will suddenly feel like I have a magnet in my left leg and it's being pulled to my right leg. It doesn't actually pull but it feels like it. It's a very strange feeling. I fought off using a walker for all these years but my balance now has gotten so bad. I can't trust only in the house. I can walk without a walker as the Mayo clinic said I sort of couch surf now. The clinic was a wonderful experience with wonderful doctors and nurses and staff. I couldn't have been treated any better. I'm very happy I went. It was quite the experience and I feel comfortable now knowing from the specialist that there's nothing they can do. I've accepted it now, but I'll tell you the pain is terrible, especially at night. I don't sleep well anymore. I wake up quite often now and stay awake, play on my phone, etc. My heart goes out to all of you suffering, the way that I know you have been. The clinic told me that pretty soon my feet would be totally dead and then I wouldn't have to worry about the pain anymore except for then. It's not good because there's nothing under your feet. It feels like cuz they're just like you had one legs or something. I know I'm not explaining myself very well, but I'd be happy to answer anybody's questions if you have any. God bless you all and thanks for listening
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Welcome Karen @kpotter62, Another member @dinee, started the following discussion that mentions Nerve Freedom that you might want to read through - Does Mayo endorse specific neuropathy supplements or cures?: https://connect.mayoclinic.org/discussion/does-mayo-endorse-nerve-feedom-supplement/.
Most of us with various forms and symptoms of neuropathy have spent a lot of money on so called "cures" in the hopes that it will be the one that provides some relief. The reality is that a cure does not exist. It's up to each of us to learn as much as we can about our condition and what treatments are available that might provide some form of relief. If you haven't seen it yet, the Foundation for Peripheral Neuropathy is a good place to start - https://www.foundationforpn.org/living-well/. They also have a list of available treatments including complementary and alternative ones here - https://www.foundationforpn.org/treatments/.
Many of us have shared our neuropathy journeys in the following discussion that you might want to scan through to see if anyone has similar symptoms to learn what was shared.
-- Member Neuropathy Journey Stories: What's Yours?
https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
Do you mind sharing a little more about your neuropathy diagnosis?