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DiscussionLiving with Neuropathy - Welcome to the group
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Replies to "Hi, new to the group, I have been experiencing tingling, stabbing pain in my feet up..."
Hi kpotter62, I'm also new to the group. I'm also 80 years old and dealing with exactly the same thing that you're going through. I have it for maybe over 20 years. Nothing has worked for me and I've tried all the things. Gabapentin different creams duloxetine all other antidepressants. Nothing has worked. Went to neurologist. Put me through tests. Said there's nothing they can do. Well I ended up going to Mayo clinic about 10 days ago and went through a battery of tests. I think they said there was 60 all together. What's blood work and everything? And they said that I do have a few like a small fiber on neuropathy and guess what? There's nothing to do for it. I went there full of Hope. Thought for sure they would be able to cure my feet. My feet are totally dead but I do have sharp shooting pains all the time. I went through the burning and the feeling of bugs crawling up my legs and then my feet felt like I was walking on golf balls or hard rocks. I've had everything you can imagine and now I'm going through where my left leg will suddenly feel like I have a magnet in my left leg and it's being pulled to my right leg. It doesn't actually pull but it feels like it. It's a very strange feeling. I fought off using a walker for all these years but my balance now has gotten so bad. I can't trust only in the house. I can walk without a walker as the Mayo clinic said I sort of couch surf now. The clinic was a wonderful experience with wonderful doctors and nurses and staff. I couldn't have been treated any better. I'm very happy I went. It was quite the experience and I feel comfortable now knowing from the specialist that there's nothing they can do. I've accepted it now, but I'll tell you the pain is terrible, especially at night. I don't sleep well anymore. I wake up quite often now and stay awake, play on my phone, etc. My heart goes out to all of you suffering, the way that I know you have been. The clinic told me that pretty soon my feet would be totally dead and then I wouldn't have to worry about the pain anymore except for then. It's not good because there's nothing under your feet. It feels like cuz they're just like you had one legs or something. I know I'm not explaining myself very well, but I'd be happy to answer anybody's questions if you have any. God bless you all and thanks for listening
Welcome Karen @kpotter62, Another member @dinee, started the following discussion that mentions Nerve Freedom that you might want to read through - Does Mayo endorse specific neuropathy supplements or cures?: https://connect.mayoclinic.org/discussion/does-mayo-endorse-nerve-feedom-supplement/.
Most of us with various forms and symptoms of neuropathy have spent a lot of money on so called "cures" in the hopes that it will be the one that provides some relief. The reality is that a cure does not exist. It's up to each of us to learn as much as we can about our condition and what treatments are available that might provide some form of relief. If you haven't seen it yet, the Foundation for Peripheral Neuropathy is a good place to start - https://www.foundationforpn.org/living-well/. They also have a list of available treatments including complementary and alternative ones here - https://www.foundationforpn.org/treatments/.
Many of us have shared our neuropathy journeys in the following discussion that you might want to scan through to see if anyone has similar symptoms to learn what was shared.
-- Member Neuropathy Journey Stories: What's Yours?
https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
Do you mind sharing a little more about your neuropathy diagnosis?