1. < Osteoporosis & Bone Health

Positive Evenity results

Posted by neesie0159 @neesie0159, Jul 23, 2024

I had my DEXA scan a week ago after finishing Evenity just over a month ago. With my luck I was expecting little results. Luckily it was good! Lumbar spine went from -4.6 to -3.0 Right femoral neck from -2.9 to -2.2. All the ridiculous copays were worth it to have my spine improve that much. My new PCP (I moved 3 months ago) hadn’t gotten the report as of today, so I downloaded it from my patient portal and emailed it to her. I still have a crappy spine, but not nearly as crappy as it was. Just a tip, be persistent when you need something medical. The place I was originally referred to for the DEXA said they couldn’t get me in until mid August. Multiple calls later, I got an appointment elsewhere within a few days. When I hadn’t heard from my PCP a week after the scan I called them. I don’t know what’s next yet, rheumatologist was pushing Prolia partly because it’s once every 6 months instead of a daily pill, but I had no unmanageable side effects with alendronate and Prolia is an unknown. Thanks for reading!

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pami | @pami | 5 days ago
In reply to @nemorose "Is anyone taking the Evenity injections, and what is your experience? Thanks so much for your..." + (show)
@nemorose

Is anyone taking the Evenity injections, and what is your experience?

Thanks so much for your kind feedback?

Alexandra Rose

Jump to this post

I am not sure. I meet with my doctor on Tuesday to discuss. I wish I could have another year of Evenity. Forteo would also be a choice but there aren't any studies for Forteo after Evenity. I feel like I need more bone growth before I go on Prolia or Reclast.

REPLY
1 reply
njhornung | @normahorn | 5 days ago
In reply to @pami "I am not sure. I meet with my doctor on Tuesday to discuss. I wish I..." + (show)
@pami

I am not sure. I meet with my doctor on Tuesday to discuss. I wish I could have another year of Evenity. Forteo would also be a choice but there aren't any studies for Forteo after Evenity. I feel like I need more bone growth before I go on Prolia or Reclast.

Jump to this post

This paper shows Evenity being used for 2 years.
https://watermark.silverchair.com/jbmr3452.pdf?token=AQECAHi208BE49Ooan9kkhW_Ercy7Dm3ZL_9Cf3qfKAc485ysgAAA08wggNLBgkqhkiG9w0BBwagggM8MIIDOAIBADCCAzEGCSqGSIb3DQEHATAeBglghkgBZQMEAS4wEQQMXVDhOwiQ3Gu3cb32AgEQgIIDAkMtmkFYtblVgPhjeCg3BLmjWU7fQD2DkxDyeoBmxsnrH18n2a66mFqTMRS14DbzD6k9-DBKWleyJOzWloJb81_Z3eFuNJPHGZu7rD9bKnZuQnqiGceJIWkk3y9CUo4ESKphW6qNaklpS0SPXN11TY7IJag7ObLXm-hE5jwKZmrTnalVLJ56SC5NAXJbI6kPO3ROK4XZhX5T3DPVrCNnI_pzu6gt-7Kpaf4kSehPIfxSNFAOlePC0X6xTXuKQwMKGNefwbx2OTvTAlKvW0uT7xQJF1I_0oSIwxbEQHPvq1ka0aPolmKNO5PnWsR7pTo4pDOD4aOlL7jTLab-0A3sBH6PpJ7MbFYa6MzsTg9RXc2vceaPO0d5uiD5QhxpR9IojZ3UdUJiFSq3rJBaB1UXUepAKskXPXodxD8X3esJuButY2TVO07fk4DlT2GjX_w7KSQP-J0A60fjg_c4uhhAox5QkNnBQP8vxd6l1vjcaYluAwW2yxoKOxzstgf6id_ELoc23GKniNM3lIgtg2NgCaLhLYu0fjQoUg4_NQRzp9qnIybShqcMBmt4PpAUHo4jkWmTEE3bHRPvyWcTjhXb9_NaO-44Wmh-M6t14Dc9XnMQvnnU9wx8f1WLknpNi0aP8YL7iYWkAJSF6ojzpTVFYAjIR_dhnP1SJrWprsttvr4qs8luhMsFsak8XkQZvfYe2iluVPmdX6jQOW0pfLBp-P6rCjuTs_NMSSPL2tV6dcWhKh3gbykqSF1T8afTOlizstUPlrRFvsdTFAeVZu5fl4741R2_thfj7IIIpELFXhvu1YISby4yVW1sR01kWnrMd-ri5rNYdDOQ9Tt-Gble7uSi0dj7EV59iLhNfQ9D7cwtocgz8G8f8BjIu3dW7zJx1w1iQYtCjhouPNk5hMDYafje5JFrBuGtXMbgsRxM8rmygg6MteG26onSaSTXySETVtAunPeD41I5yIvNnyy3xGfHo9MpGjV3_gaqS2TQZBe-SDYjPmPZ79MQuCK4t9FqM76c

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1 reply
kaylisa345 | @kaylisa345 | 5 days ago
In reply to @kristie2 "I would ask your endo to put medically necessary and see if they will let you..." + (show)
@kristie2

I would ask your endo to put medically necessary and see if they will let you do yearly. That’s how I got around the every 2 year DEXA.

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I just finished the 12 month of shots with no reactions . My doc got the ok for 1 year bone scan , and then wants to do reclast. Am just now questioning the reclast since I have mild kidney disease

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1 reply
kaylisa345 | @kaylisa345 | 5 days ago
In reply to @nemorose "Is anyone taking the Evenity injections, and what is your experience? Thanks so much for your..." + (show)
@nemorose

Is anyone taking the Evenity injections, and what is your experience?

Thanks so much for your kind feedback?

Alexandra Rose

Jump to this post

I just finished the 12 months with no side effects.

REPLY
pami | @pami | 5 days ago
In reply to @normahorn "This paper shows Evenity being used for 2 years. https://watermark.silverchair.com/jbmr3452.pdf?token=AQECAHi208BE49Ooan9kkhW_Ercy7Dm3ZL_9Cf3qfKAc485ysgAAA08wggNLBgkqhkiG9w0BBwagggM8MIIDOAIBADCCAzEGCSqGSIb3DQEHATAeBglghkgBZQMEAS4wEQQMXVDhOwiQ3Gu3cb32AgEQgIIDAkMtmkFYtblVgPhjeCg3BLmjWU7fQD2DkxDyeoBmxsnrH18n2a66mFqTMRS14DbzD6k9-DBKWleyJOzWloJb81_Z3eFuNJPHGZu7rD9bKnZuQnqiGceJIWkk3y9CUo4ESKphW6qNaklpS0SPXN11TY7IJag7ObLXm-hE5jwKZmrTnalVLJ56SC5NAXJbI6kPO3ROK4XZhX5T3DPVrCNnI_pzu6gt-7Kpaf4kSehPIfxSNFAOlePC0X6xTXuKQwMKGNefwbx2OTvTAlKvW0uT7xQJF1I_0oSIwxbEQHPvq1ka0aPolmKNO5PnWsR7pTo4pDOD4aOlL7jTLab-0A3sBH6PpJ7MbFYa6MzsTg9RXc2vceaPO0d5uiD5QhxpR9IojZ3UdUJiFSq3rJBaB1UXUepAKskXPXodxD8X3esJuButY2TVO07fk4DlT2GjX_w7KSQP-J0A60fjg_c4uhhAox5QkNnBQP8vxd6l1vjcaYluAwW2yxoKOxzstgf6id_ELoc23GKniNM3lIgtg2NgCaLhLYu0fjQoUg4_NQRzp9qnIybShqcMBmt4PpAUHo4jkWmTEE3bHRPvyWcTjhXb9_NaO-44Wmh-M6t14Dc9XnMQvnnU9wx8f1WLknpNi0aP8YL7iYWkAJSF6ojzpTVFYAjIR_dhnP1SJrWprsttvr4qs8luhMsFsak8XkQZvfYe2iluVPmdX6jQOW0pfLBp-P6rCjuTs_NMSSPL2tV6dcWhKh3gbykqSF1T8afTOlizstUPlrRFvsdTFAeVZu5fl4741R2_thfj7IIIpELFXhvu1YISby4yVW1sR01kWnrMd-ri5rNYdDOQ9Tt-Gble7uSi0dj7EV59iLhNfQ9D7cwtocgz8G8f8BjIu3dW7zJx1w1iQYtCjhouPNk5hMDYafje5JFrBuGtXMbgsRxM8rmygg6MteG26onSaSTXySETVtAunPeD41I5yIvNnyy3xGfHo9MpGjV3_gaqS2TQZBe-SDYjPmPZ79MQuCK4t9FqM76c" + (show)

Thank you! It won't open for me, but I will look for it online.

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1 reply
njhornung | @normahorn | 5 days ago
In reply to @pami "Thank you! It won't open for me, but I will look for it online." + (show)
@pami

Thank you! It won't open for me, but I will look for it online.

Jump to this post

This is the title of the Article.

Effects of 24 Months of Treatment With Romosozumab Followed by 12 Months of Denosumab or Placebo in Postmenopausal Women With Low Bone Mineral Density: A Randomized, Double‐Blind, Phase 2, Parallel Group Study

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1 reply
pami | @pami | 5 days ago
In reply to @normahorn "This is the title of the Article. Effects of 24 Months of Treatment With Romosozumab Followed..." + (show)
@normahorn

This is the title of the Article.

Effects of 24 Months of Treatment With Romosozumab Followed by 12 Months of Denosumab or Placebo in Postmenopausal Women With Low Bone Mineral Density: A Randomized, Double‐Blind, Phase 2, Parallel Group Study

Jump to this post

Thank you! I found it. I will discuss it with my doctor.😊

REPLY
smiles349 | @smiles349 | 4 days ago
In reply to @mariewms "I just completed 12 months. No side effects. I'm so curious now to learn how my..." + (show)
@mariewms

I just completed 12 months. No side effects. I'm so curious now to learn how my body responded, but insurance will only pay for a density bone scan every two years. So unfortunately have to wait one year for the next bone scan.

Jump to this post

I finished the one year Evenity injections with no side effects. My bone density test showed slight improvement going from -4.0 to -3.5. My endo thought it was a very good improvement. But based on what I was told I thought it would have been much better - at least it didn’t go the other way. You have to start biophosphates, like Reclast infusions once a year when Evenity injections are finished or you will lose whatever gain you made with the Evenity.
I did not have a good experience with Reclast.

REPLY
susaniqbal | @susaniqbal | 4 days ago
In reply to @nemorose "Is anyone taking the Evenity injections, and what is your experience? Thanks so much for your..." + (show)
@nemorose

Is anyone taking the Evenity injections, and what is your experience?

Thanks so much for your kind feedback?

Alexandra Rose

Jump to this post

I’ve had 5 treatments of Evenity and have had no side effects. My neurosurgeon order a Lumbar CT scan last month to check my bone density. I went from a Hounsfield score of 45 to a Hounsfield score of 80 in 5 months.

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rfanni | @rfanni | 4 days ago
In reply to @pami "I just had my last Evenity shot a week ago. I also had a DEXA the..." + (show)
@pami

I just had my last Evenity shot a week ago. I also had a DEXA the same day. No serious side effects. Rashes at injection sites that lasted one day but were diminished if I took Claritin an hour prior to my shots. My spine, hips and femur improved even though I had Prolia prior to Evenity. Spine improved 8.3% in eleven months. One hip improved 3.6% the other 2.4% Femurs improved 1%.

Jump to this post

Great results! What do they want you to do know though?

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