Excellent.
We absolutely must advocate for ourselves.

I think you are on the right track - taking an active role in your treatment, educating yourself, willingness to change facilities, willingness to understand, and if necessary, challenge those recommendations. Mayo advertises thier comprehensive team approach to care, but that never happened. I saw a urologist who insisted surgery was the only option for my G9 PC. I was referred by my surgeon to a Mayo RO, but during that appointment, I had to update her about my situation as it was clear my case had never been discussed with her. I had likely BCR 3 months after surgery and confirmation 6 weeks later with a PSADT of < 3 months. I had a PSMA PET scan confirming matastisis. At the follow-up appointment with my surgeon, stage 4 was confirmed, a referral to an RO was made, and I was told to check in with him 6 months later. No ADT was started and no referral to a MO or GU Oncologist was made, despite my request. When I met with the RO, she said ADT & AR & IMRT were needed immediately (the fact is they should have been started 10 weeks earlier) . She started me on Eligard. After considering the issues, I decided to move my care to The University of New Mexico Comprehensive Cancer Center. I was immediately seen by a GU Oncologist who spent an hour with me, answered all my questions, and added abiraterone w/prednisone and recommeded I start 45 sessions of IMRT when my PSA drops below 0.5. I feel like I'm now getting the comprehensive care that I had expected at Mayo. I want to state clearly that I have no competency complaints about my Mayo surgeon, radiation oncologist, or any other staff. Mayo is a wonderful facility, well staffed, and very state of the art. My concern/complaint was the lack of comprehensive coordinated care I thought I would get and the rushed nature of some appointments where I had questions but could feel the surgeon needing to move on. It is worth remembering, each of us is ultimately responsible for our own care and is our own best advocate.