How do I go through 6 weeks radiation and chemotherapy, alone?

Posted by kmlnj @kmlnj, Nov 5, 2024

I am a 72 year old widow in good health. I had a complete thyroidectomy. There is some inoperable cancer left on my trachea and tiny bit on neck lymph nodes.

I am trying to understand the "how to" of 6 weeks radiation.
Can I live alone?
Will I get so tired that I can't care for myself?
Will I get so tired I can't take the train to my treatment?
I don't know what to expect.
Thanks
Kathleen

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Thank you for recent replies.
I am doing very well. I drove myself the first 2 weeks, except chemo day.
Because I have been told side effects kick in week 3, I am paying someone to drive me each day. There is no point in taking chances. Less shopping, funds go to care.
I am finished week 2. Have had 2 chemo treatments of 10 doxorubicin. I have no issues...yet.
Someone mentioned faith. I attend mass each week. There is a Deacon who will visit me if needed.
I pray for all who suffer from cancer and all the Healthcare professionals. May the Lord have mercy on us and help us improve cures.

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@mohusker

I’m very lucky that I live in a small town and attend church regularly. It’s the church folks and neighbors that helped me navigate my trial and tribulations. Thanks to my neighbors, church members and even high school classmates, I have made it five years.

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@mohusker, it pays off to have a good social networks in times of need. I'm glad that you were able to accept the offerings of help. Sometimes that can be hard to do. Congrats on the 5 years.

May I ask what type of cancer you had? How are you doing today?

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@colleenyoung

@mohusker, it pays off to have a good social networks in times of need. I'm glad that you were able to accept the offerings of help. Sometimes that can be hard to do. Congrats on the 5 years.

May I ask what type of cancer you had? How are you doing today?

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I have Multiple Myeloma. I am doing OK, but have a great deal of back pain due to the cancer so I am somewhat limited physically.

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Kathleen,i tried to tell you my story...but....i was unable to post.....the truth......is not allowed to be told....i guess....Mario.....Canada

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Kathleen if you are interested in my story...........God bless,Mario....Canada

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Update from OP. I just completed week 4 of daily radiation and chemo. The radiation oncologist stated they are radiating my entire thyroid bed (thyroidectomy and neck dissection to remove 2 lymph nodes at base of neck). They are also radiating my trachea where the remaining cancer is.
I have zero side effects- except extreme pain in my throat. Razor blade throat and throat on fire.
I am not going to list all side effects here that are possible, I dont have any. I am not even tired.

So...the pain. The chemo team is in charge of pain (not radiology). Not sure why.
I only need pain meds to swallow. Otherwise, I just walk around with a sore throat. Level 8. I spit the mucous out, so I don't have to swallow it.
I am on tylenol max 3000 mg a day.
We tried 5mg oxy but I had a reaction. So we stopped.
Now we are trying gabapentin. I refused fentanol.
Tylenol works, it's just not great for your liver.
My goal isn't low pain. With pain at 4 or 5, I can swallow the liquid diet, wincing as I go. Water is really difficult.
My diet is Kate Farms 3 x day.
My labs are good.
They will do IV hydration for week 5 and week 6.

Everyone be well. If something is not working, try something else. Ask for help. If you are in pain, let the team know.
Kathy

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@kmlnj

Update from OP. I just completed week 4 of daily radiation and chemo. The radiation oncologist stated they are radiating my entire thyroid bed (thyroidectomy and neck dissection to remove 2 lymph nodes at base of neck). They are also radiating my trachea where the remaining cancer is.
I have zero side effects- except extreme pain in my throat. Razor blade throat and throat on fire.
I am not going to list all side effects here that are possible, I dont have any. I am not even tired.

So...the pain. The chemo team is in charge of pain (not radiology). Not sure why.
I only need pain meds to swallow. Otherwise, I just walk around with a sore throat. Level 8. I spit the mucous out, so I don't have to swallow it.
I am on tylenol max 3000 mg a day.
We tried 5mg oxy but I had a reaction. So we stopped.
Now we are trying gabapentin. I refused fentanol.
Tylenol works, it's just not great for your liver.
My goal isn't low pain. With pain at 4 or 5, I can swallow the liquid diet, wincing as I go. Water is really difficult.
My diet is Kate Farms 3 x day.
My labs are good.
They will do IV hydration for week 5 and week 6.

Everyone be well. If something is not working, try something else. Ask for help. If you are in pain, let the team know.
Kathy

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Kathy, Sounds like you are handling it well and No feeding tube? 20 rounds down? I assume you are still driving yourself to treatment? Your symptoms are very close to what mine were. I managed to deal with the throat pain but needed Tylenol or Oxy to help get a meal down. All I really tried to do was get down good protein and maintain my weight. Hang in there and keep fighting. It will get a little worse up to about 3 weeks after final treatment but you can do it. Today about 18 months out I am back to about 90% with Clean scans. God speed.

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@jonesja

Kathy, Sounds like you are handling it well and No feeding tube? 20 rounds down? I assume you are still driving yourself to treatment? Your symptoms are very close to what mine were. I managed to deal with the throat pain but needed Tylenol or Oxy to help get a meal down. All I really tried to do was get down good protein and maintain my weight. Hang in there and keep fighting. It will get a little worse up to about 3 weeks after final treatment but you can do it. Today about 18 months out I am back to about 90% with Clean scans. God speed.

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I have had a friend drive me, and I pay her. It is helpful to know I am not alone..
I have been on a total liquid diet, Kate Farms . I drink it with pain but I get it done.

Thanks!

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@kmlnj

Update from OP. I just completed week 4 of daily radiation and chemo. The radiation oncologist stated they are radiating my entire thyroid bed (thyroidectomy and neck dissection to remove 2 lymph nodes at base of neck). They are also radiating my trachea where the remaining cancer is.
I have zero side effects- except extreme pain in my throat. Razor blade throat and throat on fire.
I am not going to list all side effects here that are possible, I dont have any. I am not even tired.

So...the pain. The chemo team is in charge of pain (not radiology). Not sure why.
I only need pain meds to swallow. Otherwise, I just walk around with a sore throat. Level 8. I spit the mucous out, so I don't have to swallow it.
I am on tylenol max 3000 mg a day.
We tried 5mg oxy but I had a reaction. So we stopped.
Now we are trying gabapentin. I refused fentanol.
Tylenol works, it's just not great for your liver.
My goal isn't low pain. With pain at 4 or 5, I can swallow the liquid diet, wincing as I go. Water is really difficult.
My diet is Kate Farms 3 x day.
My labs are good.
They will do IV hydration for week 5 and week 6.

Everyone be well. If something is not working, try something else. Ask for help. If you are in pain, let the team know.
Kathy

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ohhhh how painful for you.
how about asking your pain team for this :Oral lidocaine, often referred to as "viscous lidocaine," is a common treatment option for radiation esophagitis, providing topical anesthetic relief to the inflamed esophageal lining, helping to alleviate pain and discomfort associated with swallowing difficulty caused by radiation therapy.

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Update.
Gabapentin is not a pain reliever, for me. So I am not on gabapentin. I am trying oxycondone, again. The funny thing, is Tylenol is a good pain reliever.
Next week is week 6.
I am getting tired of Kate Farms and would love a slice of pizza!

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