Provenge experience??

I know quite a few people that have taken Provenge. And almost all the cases it Cause no problems. Whether or not it really makes a difference is a matter of a dispute. I sure would get it if my PSA started rising.

Preveng does work best when your PSA is low, so you should consider doing it now before his PSA gets higher.

Have they talked about chemo or maybe Pluvicto? When you have widespread cancer, Pluvicto can make a difference. Unfortunately, it only works real well and 1/3 of the people works OK and 1/3 and not at all and 1/3

Normally, when the cancer is widespread, they use triplet therapy with ADT, A second drug like Xtandi And chemotherapy. Is there some reason they didn’t do chemo with your dad when he first was diagnosed?

So all this happened in a matter of weeks. They started him on the two oral meds right away. When we met with oncologist he said the chemo would take about 6 months but it would pretty much knock him down and he wouldn’t be able to do anything and it would add about 6 months to end of his life. Well to my dad that wasn’t a good trade off because he wouldn’t miss his grandkids games and stuff and live 6 months longer when he will probably be at his worst. Well about a month after this we went to Md Anderson and that Dr said the chemo would not have done that to him. That more than likely he would be tired a couple days and fingers tingle but that was it. But he didn’t want to start chemo then because it had already been a couple months since he started the meds and it was all working really good.
Only issue right now other than not much energy is he started having pain in lower back that radiates to abdomen and shoots down leg. If we could get that stopped it would be wonderful!

The pain you described with it, shooting down the leg is frequently sciatica. I get it when I get lower back pain, but I put on my back-aline belt And in a couple of days, I’m back to normal. Has he had this back pain for a long time with infrequent issues about it shooting down the leg, or is this brand new?

Sure, it could be a metastasis in your back but frequently it is not that, once you have started on the ADT drugs.

Did you ever get a PSMA pet scan? That would show where there is metastasis in your body, but if your PSA is too low, the scan won’t work very well.

In 2023 his psa was 2 and in 2024 it was 154. He has had multiple scans but I think I’m going to ask them to do another one soon. The dr at Md Anderson said pet scans really don’t show prostate cancer so he prefers ct scans. Tell me about the belt or better yet a link maybe. If it will help we will get whatever he needs. Oh and we do know his is all over his bones .

Are you sure the doctor said that a PET scan doesn’t show prostate cancer? The PSMA Pet scan is the industry standard for finding prostate cancer in a body.

If you think he doesn’t produce PSMA so the scans show nothing then ask about the FDG scan. FDG can find cancer that doesn’t produce PSMA

All I know is he said he preferred a ct over a pet scan. This was the Md Anderson Dr

This is after the medical community has said that the CT scan and bone scan should be replaced by the PSMA pet scan.

Sounds like you need a different doctor. You should find a Genito urinary oncologist, they are experts in prostate cancer and will improve your treatment.

Following. No PSMA Pet Scan? Specifically, a PSMA PET SCAN not just a regular PET Scan.