← Return to Diagnosed with NET si-NET Stage 1 Grade 1

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@nevinrbaskin

Here’s a brief summary prior to starting treatment with Dr Wolin.
59 year old male presents with PMH of gastrointestinal issues. 12/2020 abdominal US - hepatitic steatosis, 2 right lobe hepatic 0.9cm cysts. 1/2021 colonoscopy and endoscopy performed- diagnosed with gastritis and mild diriticulitis. Prescribed Omeprazole with limited relief noted.
Flushing reported to PCP- no concern noted.
10/2023- notified PCP about continuing gastrointestinal issues: feeling bloated, abdominal pain/cramping, periodic diarrhea. Sent for colonoscopy, endoscopy and abdominal US. Abdominal US revealed multiple (15-18) hepatic lesions. Sent for CT-scan and MRI- mass found in mesentery. Liver Biopsy performed- diagnosed with Grade 1, well differentiated neuroendocrine tumor. 11/15/23 Seen by medical oncologist at Lehigh Valley Hospital Hazleton- sent for Dotate PET scan and Chroamagran A blood test.
12/12/23 Surgical Oncologist at Lehigh Valley Allentown- resected 60 cm small intestines including 2 primary GI tumors. Mesentery mass not resected secondary to close proximity to mesentery artery and vein.
Current plan of treatment- monthly Octreotide injections ( began 1/23/23) Discussed possible Nuclear medicine therapy- PRRT.
CT scan , echocardiogram, 5-HIAA , and bloodwork scheduled for 2/8/24.

K167< 1%

Had a consult with a NET Dr at Dana Farber- Recommendation- monthly Landreotide Injections.

Consulted with Dr Wolin 4/24. Concerned with mesentery tumor pressing on mesentery vein and artery. Recommended PRRT.

4 PRRT completed at Mt Sinai in NYC. Last treatment 1/3/25.

Follow up in April. Dotate PETSCaN with copper isotope (more definitive than Luthera. ) ,
CT scan and Plasma test. Appointment with Dr Wolin 4/28/25.

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Replies to "Here’s a brief summary prior to starting treatment with Dr Wolin. 59 year old male presents..."

So it seems like you had NETS probably back in 2020 when you went to your PCP but maybe they were missed? Because it wasn’t till 2023 when the liver tumors and mesentery mass were found and then they diagnosed you with NET. Thats a short time grabe fir all that to form and spread so it seems you had a NET perhaps in 2020 that went undetected? I hope I’m reading into this correctly .