Positive Evenity results

Posted by neesie0159 @neesie0159, Jul 23, 2024

I had my DEXA scan a week ago after finishing Evenity just over a month ago. With my luck I was expecting little results. Luckily it was good! Lumbar spine went from -4.6 to -3.0 Right femoral neck from -2.9 to -2.2. All the ridiculous copays were worth it to have my spine improve that much. My new PCP (I moved 3 months ago) hadn’t gotten the report as of today, so I downloaded it from my patient portal and emailed it to her. I still have a crappy spine, but not nearly as crappy as it was. Just a tip, be persistent when you need something medical. The place I was originally referred to for the DEXA said they couldn’t get me in until mid August. Multiple calls later, I got an appointment elsewhere within a few days. When I hadn’t heard from my PCP a week after the scan I called them. I don’t know what’s next yet, rheumatologist was pushing Prolia partly because it’s once every 6 months instead of a daily pill, but I had no unmanageable side effects with alendronate and Prolia is an unknown. Thanks for reading!

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@osteoresearch

What are your plans after great results? Reclast, HRT? Were you on HRT during Evenity year? If so, what was HRT dosage. I’m asking because I hesitate to do reclast after Evenity. I’m hoping HRT might be a better option!

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I have been on Biote which are pellets that are inserted . They are bioidentical hormones of estradiol and testosterone. I have been doing this during the year of my Evenity . I am due to start Prolia for a year which will help with BMD and then move on to reclast.

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Is anyone taking the Evenity injections, and what is your experience?

Thanks so much for your kind feedback?

Alexandra Rose

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@nemorose

Is anyone taking the Evenity injections, and what is your experience?

Thanks so much for your kind feedback?

Alexandra Rose

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I just completed 12 months. No side effects. I'm so curious now to learn how my body responded, but insurance will only pay for a density bone scan every two years. So unfortunately have to wait one year for the next bone scan.

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@mariewms

I just completed 12 months. No side effects. I'm so curious now to learn how my body responded, but insurance will only pay for a density bone scan every two years. So unfortunately have to wait one year for the next bone scan.

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Please verify that with your insurance company as others have reported coverage of more frequent DEXA's. Or you can self pay if they won't.

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@nemorose

Is anyone taking the Evenity injections, and what is your experience?

Thanks so much for your kind feedback?

Alexandra Rose

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12 months. No noticeable side effects and very good results.

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@normahorn

Please verify that with your insurance company as others have reported coverage of more frequent DEXA's. Or you can self pay if they won't.

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Yes, it's often the case that you can get more frequent DEXAs if you are taking medication for osteoporosis.

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@mariewms

I just completed 12 months. No side effects. I'm so curious now to learn how my body responded, but insurance will only pay for a density bone scan every two years. So unfortunately have to wait one year for the next bone scan.

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Your doctor can fill out a letter or form for your insurance provider indicating that this is a medical necessity. It's a common practice, and they should be familiar with this process.

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@nemorose

Is anyone taking the Evenity injections, and what is your experience?

Thanks so much for your kind feedback?

Alexandra Rose

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I just had my last Evenity shot a week ago. I also had a DEXA the same day. No serious side effects. Rashes at injection sites that lasted one day but were diminished if I took Claritin an hour prior to my shots. My spine, hips and femur improved even though I had Prolia prior to Evenity. Spine improved 8.3% in eleven months. One hip improved 3.6% the other 2.4% Femurs improved 1%.

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@mariewms

I just completed 12 months. No side effects. I'm so curious now to learn how my body responded, but insurance will only pay for a density bone scan every two years. So unfortunately have to wait one year for the next bone scan.

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I would ask your endo to put medically necessary and see if they will let you do yearly. That’s how I got around the every 2 year DEXA.

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@pami

I just had my last Evenity shot a week ago. I also had a DEXA the same day. No serious side effects. Rashes at injection sites that lasted one day but were diminished if I took Claritin an hour prior to my shots. My spine, hips and femur improved even though I had Prolia prior to Evenity. Spine improved 8.3% in eleven months. One hip improved 3.6% the other 2.4% Femurs improved 1%.

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that is wonderful! So glad to hear that the side effects were minimal! What is next next and you long term plan? Thanks

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