Here’s a brief summary prior to starting treatment with Dr Wolin.
59 year old male presents with PMH of gastrointestinal issues. 12/2020 abdominal US - hepatitic steatosis, 2 right lobe hepatic 0.9cm cysts. 1/2021 colonoscopy and endoscopy performed- diagnosed with gastritis and mild diriticulitis. Prescribed Omeprazole with limited relief noted.
Flushing reported to PCP- no concern noted.
10/2023- notified PCP about continuing gastrointestinal issues: feeling bloated, abdominal pain/cramping, periodic diarrhea. Sent for colonoscopy, endoscopy and abdominal US. Abdominal US revealed multiple (15-18) hepatic lesions. Sent for CT-scan and MRI- mass found in mesentery. Liver Biopsy performed- diagnosed with Grade 1, well differentiated neuroendocrine tumor. 11/15/23 Seen by medical oncologist at Lehigh Valley Hospital Hazleton- sent for Dotate PET scan and Chroamagran A blood test.
12/12/23 Surgical Oncologist at Lehigh Valley Allentown- resected 60 cm small intestines including 2 primary GI tumors. Mesentery mass not resected secondary to close proximity to mesentery artery and vein.
Current plan of treatment- monthly Octreotide injections ( began 1/23/23) Discussed possible Nuclear medicine therapy- PRRT.
CT scan , echocardiogram, 5-HIAA , and bloodwork scheduled for 2/8/24.

K167< 1%

Had a consult with a NET Dr at Dana Farber- Recommendation- monthly Landreotide Injections.

Consulted with Dr Wolin 4/24. Concerned with mesentery tumor pressing on mesentery vein and artery. Recommended PRRT.

4 PRRT completed at Mt Sinai in NYC. Last treatment 1/3/25.

Follow up in April. Dotate PETSCaN with copper isotope (more definitive than Luthera. ) ,
CT scan and Plasma test. Appointment with Dr Wolin 4/28/25.

To answer your question, yes if it spreads (metastasized) I have it in my liver, mesentery, sub-clavicular lymph node and acetabulum ….