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Anyone with LC 4 years

Post-COVID Recovery & COVID-19 | Last Active: Feb 17 4:30pm | Replies (55)

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@leinaz

I’m 4 years in, was just diagnosed with Long Covid/Covid syndrome after three years of testing and multiple specialists trying to find out what’s wrong with me.
I still have the blurred vision off and on, the brain fog that comes and goes, inflammation, muscle aches, weakness, nerve pain, waves of nausea, fatigue, etc. They can see the white blood cell count in my blood work, it’s real, but I can’t get any solutions. I had two Pfizer shots in 2021 then almost immediately got Covid and I have not been the same since. Before the shots I was hyperactive with almost a photographic memory, kicking butt in my career. Now, I’m just frustrated all the time, because I’m limited. I’m 56, I can do my job, but barely. I’m terrified of being laid off, there is no way I could do any sort of job where I had to punch a clock as my body would betray me.
My immunologist has me on naltrexone and claims 70% of his patients feel better using it. I’ve been on it two months now and I’m not noticing much difference.
I live in AZ. Does anyone know of any doctors in the Phoenix area who specialize in Long Covid/Covid syndrome?

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Replies to "I’m 4 years in, was just diagnosed with Long Covid/Covid syndrome after three years of testing..."

There is an expert on long Covid at Mayo Clinic in Rochester
Dr. Greg Vanichkachorn. In fact they have an entire team treating patients with Long Covid. He diagnosed my husband when nobody else believed he had developed long Covid.