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I’m 4 years in, was just diagnosed with Long Covid/Covid syndrome after three years of testing and multiple specialists trying to find out what’s wrong with me.
I still have the blurred vision off and on, the brain fog that comes and goes, inflammation, muscle aches, weakness, nerve pain, waves of nausea, fatigue, etc. They can see the white blood cell count in my blood work, it’s real, but I can’t get any solutions. I had two Pfizer shots in 2021 then almost immediately got Covid and I have not been the same since. Before the shots I was hyperactive with almost a photographic memory, kicking butt in my career. Now, I’m just frustrated all the time, because I’m limited. I’m 56, I can do my job, but barely. I’m terrified of being laid off, there is no way I could do any sort of job where I had to punch a clock as my body would betray me.
My immunologist has me on naltrexone and claims 70% of his patients feel better using it. I’ve been on it two months now and I’m not noticing much difference.
I live in AZ. Does anyone know of any doctors in the Phoenix area who specialize in Long Covid/Covid syndrome?
Replies to "I’m 4 years in, was just diagnosed with Long Covid/Covid syndrome after three years of testing..."
Have you had your Thyroid Levels checked? I’m not a doctor, but I had horrible body inflammation, brain fog, fatigue that was terrible. My daughter had a total Thyroidectomy 2 years ago and she asked me to have my Thyroid levels checked, even through I never had Thyroid issues. To my surprise and more importantly my doctor’s surprise, I have Hashimoto’s with Hypothyroidism! Off the charts numbers for Hashimoto’s, so I started researching what to do and found a book on Hashimoto’s to read by Izabella Wentz, M.D. and began eliminating gluten, dairy and soy, which she suggests to do with Hashimoto’s. I lost the inflammation in my body and have way less brain fog. Hashimoto’s is an autoimmune disease and if you treat your body well, your symptoms will get less and less. Start by having that thyroid checked and see what your levels actually are. You might be surprised as I was. Good luck and good health!
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There is an expert on long Covid at Mayo Clinic in Rochester
Dr. Greg Vanichkachorn. In fact they have an entire team treating patients with Long Covid. He diagnosed my husband when nobody else believed he had developed long Covid.