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Provenge experience??

Prostate Cancer | Last Active: 6 days ago | Replies (8)

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@lorenze76

So all this happened in a matter of weeks. They started him on the two oral meds right away. When we met with oncologist he said the chemo would take about 6 months but it would pretty much knock him down and he wouldn’t be able to do anything and it would add about 6 months to end of his life. Well to my dad that wasn’t a good trade off because he wouldn’t miss his grandkids games and stuff and live 6 months longer when he will probably be at his worst. Well about a month after this we went to Md Anderson and that Dr said the chemo would not have done that to him. That more than likely he would be tired a couple days and fingers tingle but that was it. But he didn’t want to start chemo then because it had already been a couple months since he started the meds and it was all working really good.
Only issue right now other than not much energy is he started having pain in lower back that radiates to abdomen and shoots down leg. If we could get that stopped it would be wonderful!

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Replies to "So all this happened in a matter of weeks. They started him on the two oral..."

The pain you described with it, shooting down the leg is frequently sciatica. I get it when I get lower back pain, but I put on my back-aline belt And in a couple of days, I’m back to normal. Has he had this back pain for a long time with infrequent issues about it shooting down the leg, or is this brand new?

Sure, it could be a metastasis in your back but frequently it is not that, once you have started on the ADT drugs.

Did you ever get a PSMA pet scan? That would show where there is metastasis in your body, but if your PSA is too low, the scan won’t work very well.