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@colleenyoung

I’m tagging @pattyclaire to make sure she saw your question. @cjmchicago. Good question. Patty how are you doing now?

Cjmchicago, have you recently been diagnosed with an intraductal papillary mucinous neoplasm (IPMN)? How are you doing?

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Replies to "I’m tagging @pattyclaire to make sure she saw your question. @cjmchicago. Good question. Patty how are..."

Hello,
Yes, I was diagnosed with an 8mm possible IPMN in the uncinate process a couple of months ago without ductal dilation or concerning features from the CT scan. I am having an MRCP in July to see where things are at.
I am concerned because I have so many GI issues, but everything I read, and the GI doc thinks my GI symptoms and IPMN are not related. I guess I'm also worried because I had 2 abdominal CT scans about 16 months ago and they didn't see an IPMN. It said my pancreas was normal. This makes me think it is growing quickly. I also read so much conflicting information online about IPMN's. Some say it's a 30% chance a side branch will turn into cancer in my life and other studies say my risk is 1-2%. It's hard to know what to believe or how to prepare for this. At 54, I wonder if I should stop putting money into my retirement.

I live with a lot of anxiety and fear with this IPMN. I have had nausea, indigestion, bloating, trapped gas, and a lot of constipation for 18 months. Last week my GI provider did a Pancreatic Elastase-1 stool test and it was 54 which means I’m severely deficient in pancreatic enzymes. So now I also have EPI and she wants to put me on Creon to help with digestion. I also have developed middle back pain about a week ago which is adding more fuel to my fire. So now, I have all these GI symptoms, EPI, 0.8 cm IPMN in the uncinate process, middle back pain, and mild pancreatic atrophy, I’m panicking that I have pancreatic cancer or that it’s coming soon. All my labs, including lipase and lypase are normal and I did a CA19-9 three months ago and it was 4. I moved up my MRCP to next Thursday. That’s where I’m at today.