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Prednisone side effects on partner
Autoimmune Diseases | Last Active: Feb 23 10:49am | Replies (15)Comment receiving replies
My husband got septic each time he had colon surgery. On a ventilator both times for a month.
No Dr makes the person or family aware of the cognitive changes from the illness or medications. Other people including attorneys took advantage of our family.
Noone prepares or protects the caretakers when patients decide they di not like you anymore.
Replies to "My husband got septic each time he had colon surgery. On a ventilator both times for..."
Thank you for reaching out!
It sounds like we have a lot of similarities.
Since my original post my husband was just starting Remicade and now I believe he is on Stalera now and finally fully tapered off prednisone as of a few months ago. I think they are still navigating his dosages but life was starting to feel back to normal…(ish) it took me a while to trust him or feel close to him I felt very resentful and too had to process the really meant things he said and did to me. We were on the verge of separating because it was getting so bad. I slept on the couch sobbing every night because I felt a monster because he was the one dealing with this awful disease… and (this sounds bad) but a little afraid of him. THERAPY! and
support groups actually helped a lot and helped me better understand what the prednisone was doing and how I could best act around him to not triggered that”flight or fight” response.
Things did started feeling normal… I felt like I was getting my husband back and then out of some screwed twist of fate… I became seriously ill and now I am on a high dose of prednisone. I swear it feels like a messed up fever dream. There are no words to tell you how devastated I am (when I’m able to feel things) that after we were getting our lives back here I am on the other side. Fortunately I learned ALOT from these support groups, no my triggered and try to be very communicative about what’s going on with me prednisone wise so my loved ones that there is certain times of days I need to stay in a calm peaceful place and not to get me worked by bringing up high energy, emotional or heated convos topics. At least my husband understands. Unfortunately / Fortunately I can’t work so I always have to be calm and serene because of how sick I am. Be that as it may, I appreciate you sharing your experience and will take that to heart. I don’t want to be sick and loose myself.
Take care of your self and I hope you and your husband both get closer to normal as soon as possible.
-Rose
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I am so so sorry you and /have to go through all that!
Out of the blue, about two months after my husband finally tapered off; out of the blue, I’m now going through some serious health issues.
With some twist of fate now I am on high doses of prednisone.
I do have to say being on the other side as the caretaker; and all the support and resources I’ve received from these support groups, i know my triggers and changes. I know how to advocate for my self so my husband, family & loved ones know my 10 commandments of prednisone. I hope you husband is feeling better!