← Return to 7% Saline Success Story that warmed my heart.

Discussion

7% Saline Success Story that warmed my heart.

MAC & Bronchiectasis | Last Active: 3 hours ago | Replies (120)

Comment receiving replies
@cahcb4769

My ID Dr. recommended this guy. He seemed ok at first but he really messed up with this surgery thing and now I don’t qualify. I have been beyond crushed since this news of two weeks ago and now feel like I’m slowly dying. I have an appt coming up with my ID Dr. in March because he wants to see if adding the Ethambutol is helping. Sure hope it is but……I’m just so sad…..I hate this. It’s been 4 long years already. How I long to again have a conversation with someone without coughing and/or explaining I’m not contagious it’s just an ongoing lung problem. Maybe I’m just being a big baby but I’m so done with this.

Jump to this post


Replies to "My ID Dr. recommended this guy. He seemed ok at first but he really messed up..."

You are NOT a big baby! It is perfectly understandable how you could feel frustrated and without a life raft. I know how it feels to be so afraid to be anywhere due to uncontrollable coughing fits. Is there a possibility for you to enlist the help of a patient advocate at your healthcare facility? If so, explain to them your situation and your exclusion from the care you desperately need as well as your declining quality of life, both mentally and physically. My heart goes out to you. Please do not give up the fight. I know it is hard but don't give up.