← Return to Limited Scleroderma or CREST Syndrome: What helps?

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@birdieca

Yes, scleroderma is the disease that keeps on giving! All of your issues seem to be treatable. Find a doctor or doctors that can help you. I have had systemic scleroderma for 25 years. The doctors seem to be treating symptoms in their specific realm. You need a good GI Doc for your GERD, a good dermatologist/rheumy for your hands (may benefit from physical therapy by a hand specialist), and a good cardiologist for your heart. You should also be seen by a pulmonologist (to rule out lung fibrosis and PAH). There are now drugs for dry eyes and mouth, heart burn, lung issues and many other things you are complaining about.

Like others have said, be your own advocate and look for a good doctor!

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Replies to "Yes, scleroderma is the disease that keeps on giving! All of your issues seem to be..."

@birdieca Welcome to MayoClinicConnect! This is a great group of people who try to help each other. I can see that you will really fit in! You have the right temperament and experience! How did you find Connect?