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Esophageal Lichen Planus

Autoimmune Diseases | Last Active: 3 hours ago | Replies (121)

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@ixchel13

Hello and thank you for taking the time to reply! It feels very lonely having this condition, on top of everything else. I hadn’t been told about the dexamethasone rinse for 10 days only. I appreciate that. I have a few other autoimmune issues going on so the treatments I receive are more aggressive I think. The chest pain feels horrible and the only thing that helps is Vicodin, but only for a few hours. I make myself eat though, even though my mouth hurts, because they already told me if I start losing weight I’ll be in even bigger trouble. I’ve eliminated almost all processed foods from my diet. Good luck with your OLP.❤️

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Replies to "Hello and thank you for taking the time to reply! It feels very lonely having this..."

Hi! I have had several biopsies done when having my esophagus stretched a bit.
I have to have it stretched a few times a year. I have a very hard time eating anything. I eat anything I can. I have lost a lot of weight. I also have Lichen Planus in my mouth and breakouts on my legs.
Although, the LP on my legs has been in remission for a year now. Do you have LP in other areas also?
Like you, I have other autoimmune diseases.
Eating is very difficult for me too.
Thank you for your response. I would love to stay in touch with you since ELP is so rare.❤️. Take care!