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Myasthenia Gravis

Autoimmune Diseases | Last Active: Feb 18 2:19pm | Replies (42)

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@wcburns2

@Michigan Jan… I don’t take a “ steroid “ per se but I do take Cell Cept 2000 mg per day for a different eye issue. I take that is for long term use and “sorta like, or used in place of, Prednisone”

@cblue
I have had an EMG test but it just confirmed MG diagnosis from my blood test 4 yrs ago that was positive, so a little different than your situation with blood testing being negative for MG. It was a very uncomfortable test. My MG problem is only in my eye. (OMG). The longer is stays in your eyes only, odds are better it doesn’t progress to the rest of your body or become generalized.

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Replies to "@Michigan Jan… I don’t take a “ steroid “ per se but I do take Cell..."

Thanks the neurologist isn't sure it's MG-- the droopy eye may be "twiching" (fancy term for twitching she gave me based on her examination Ican't remember the name of it)--but if it's that instead of drooping, it could be a movement disorder issue that wouldn't need treatment unless the eye drooping or twitching becomes a extremely problematic. But they're still busy diagnosing if it's a MG. I'm beginning to have trouble swallowing, which concerns me because it's a little different than when I have a lack of saliva. I still have a saliva functioning that's reasonably good and is boosted by the medication that take three times a day. (at least it's good based on examination by the oral pathologist who finally diagnosed me.)