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Invisible illness how do you cope?

Autoimmune Diseases | Last Active: 4 days ago | Replies (25)

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@lisay1

So understandable. I felt so ill and kept a list of my symptoms (long and ever-changing) and doctors looked at me like I was crazy. My husband did not believe as well. After about three years my primary doctor sent me for x-rays for my misshapen hands after my insistence. I kept suggesting it was Rheumatoid Arthritis and he felt they were injured and healed that way! Laughable, I think I would know. In any case, after taking the x-rays they confirmed it was RA and sent me to a Rheumatologist. My suggestion is don't give up. You know when something is wrong and just because they can't figure it out doesn't mean it's not there. It may take time but keep fighting. I was happy (in a way) when they confirmed my RA because I felt that I wasn't crazy and also knew what I was fighting. Sending you hugs🌷

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Replies to "So understandable. I felt so ill and kept a list of my symptoms (long and ever-changing)..."

Also, one of the hardest things is when people think you "look well" but are struggling. Like you said it's a silent disease.