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Polymyalgia Rheumatica (PMR) | Last Active: 5 hours ago | Replies (48)

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@dadcue

My rheumatologists group follows a protocol and most all their PMR patients are off Pred within 2 years.
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I like this protocol.

Five years ago when I tried Actemra, my rheumatologist said I was breaking new ground if he could get Actemra approved for me to treat PMR. At the time, Actemra was only FDA approved for GCA and I didn't have GCA. The reason Actemra was approved for me was mostly because I was unable to taper off Prednisone after 12 years.

In my opinion, the sooner people can get off Prednisone the better. I'm glad people now have Kevzara as an alternative to Prednisone for the treatment of PMR. Kevzara wasn't an option when I was diagnosed with PMR 12 years ago.

Do you live in Australia or I'm guessing you own an Australian Shepherd?

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Replies to "My rheumatologists group follows a protocol and most all their PMR patients are off Pred within..."

Yes, I was very fortunate. Kevzara was US FDA approved the month of my first rheum appointment. My rheum, internal medicine, and endocrinology practices are all within one large practice, affiliated with a medical school. So everyone had a running start when it came to Kevzara. The rheums had their plan and tinelines ready tho.my Internal Med Dr had told me they get folks off Pred within 2 yrs when he referred me, about 6 months prior. Also my rheumatologist is a geriatric rheumatologist, so I've had many times to appreciate that little added bit of his training. He knows more about aging than I do, LOL.

I've owned Australian Shepards for many years.