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I was diagnosed April 2022 so this will be three years this April and I had heard that if it had transitioned after three years we might be OK but it will stay. OMG. I am 75 now. So I take 2.5 Prednisone as well as the Mestinon two or three times a day are you able to take just mestinon and no steroid?
I had my I was removed two years ago at my neurologist suggestion even though it had Atrevor kid, she said some studies show the timer says part of the issue
One more thing when I hit the following incident fainted due to heat at the hospital they were lax about giving me my prednisone and Mestinon but fortunately I had some with me and treated myself still developed double vision, and when I saw my primary, she said they should've given me a dose of hydrocortisone when I had an incident like that. Has anybody else heard that?
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@Michigan Jan… I don’t take a “ steroid “ per se but I do take Cell Cept 2000 mg per day for a different eye issue. I take that is for long term use and “sorta like, or used in place of, Prednisone”
@cblue
I have had an EMG test but it just confirmed MG diagnosis from my blood test 4 yrs ago that was positive, so a little different than your situation with blood testing being negative for MG. It was a very uncomfortable test. My MG problem is only in my eye. (OMG). The longer is stays in your eyes only, odds are better it doesn’t progress to the rest of your body or become generalized.