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Kevzara

Polymyalgia Rheumatica (PMR) | Last Active: 5 hours ago | Replies (48)

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@dadcue

How soon was Kevzara started after you were diagnosed with PMR? My response to Actemra was dramatic but I was on Prednisone for more than 12 years before Actemra was tried. I needed to wait a long time for my cortisol level to improve before I could taper off Prednisone. It took a long time for my adrenal function to rebound after being suppressed for 12 years.

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Replies to "How soon was Kevzara started after you were diagnosed with PMR? My response to Actemra was..."

A few months. Less than 6. I reached a point where I couldn't reduce the Pred, so we increased back to a good dose, paused and then tried again and that was it - added Kevzara. My rheu.atologists group follows a protocol and most all their PMR patients are off Pred within 2 years.

Dadcue, I wasn't treated for PMR until I was diagnosed by the rheumatologist. I thought I had an orthopedic problem, probably from overdoing it. Went to internist. He did tests for inflammatory markers (normal), put me on Rx NSAID. I still hurt. Made appt with orthopedic. Went back for follow up with internist. Internist said it was too emsoon to repeat the blood tests but he was sure the orthopedic would; he suspected a rheumatoid disorder. Orthopedic appt (a week or 2 later) said, "Prepare to meet a rheumatologist," and ordered a repeat inflammatory marker panel. Well those came back high and as soon as the results hit my electronic record, I got a call from the internist to come in the next day. He didn't discuss diagnosed but referred me to rheum - 6 month wait. Dr Google gave me a differential diagnosis of PMR vs RA. Orthopedic had referred me to PT to try to keep me moving, IM Dr recommended a trial of anti inflam diet and continue Meloxicam (rx NSAID). 6 mos passed and I was walking thanks to that and a busy schedule at my gym. Rheumatologist dx'd PMR 1st visit (he had new lab results), began Pred @15 mg. That was Nov. Started Kevzara around March of last year.