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Vulvar Cancer: Anyone else?

Gynecologic Cancers | Last Active: 1 day ago | Replies (140)

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@buffalogal

I have also been dealing with vulvar cancer, diagnosed November 2023. I had a radical valvectomy within a couple of weeks of diagnosis then followed up with seven weeks of radiation, no chemo. All my tests are clear now but there is that lingering worry of a recurrence. I also have lichen sclerosus which causes a lot of itching and burning. My doctor says this cancer was due partly to lichen and it tested positive for HPV. All the biopsies and tests were not difficult or painful so there’s really not much to worry about there. Radiation was challenging and took a few weeks after completed to fully heal. I had low energy for months and took about 3 weeks off work, but now, a year later I feel good. You can get through this!

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Replies to "I have also been dealing with vulvar cancer, diagnosed November 2023. I had a radical valvectomy..."

@buffalogal I was diagnosed with endometrial cancer in 2019 and a recurrence in 2021. Like you, I have the worry in the back of my mind of recurrence or a new cancer. I have accepted that this is my life and try on a daily basis to keep those worries in my "rear view mirror". I'm happy to know that you feel good and have come back here to offer your support and encouragement to others.

How are you dealing with the itching & burning? Are you using anything for it?
Creams?? OTC or prescription?
Hope you are doing well!

Hope you are well.
How do you deal with the itching & burning? Are you using creams if so what do you use? I still tend to get a lot of irritation. Wasn’t expecting it to last this long. It comes & goes! Is this the new normal?