You are having CAR T? I’m happy to report, my husband is doing better today (3 1/2 months since his CAR T) than he has for years. A new lease on life. Plays tennis every day and back to hiking. His treatment has been miraculous. He didn’t have any other options left and is so happy CAR T was available. He was/is in a clinical trial. The actual process - getting the re re-engineered cells - was easy. They drip in and it takes an hour! There are, however, lots of prep appointments and procedures before you get your improved cells. Amazing science!!

"Complete Metabolic Response" are my 3 favorite words in oncology. I just had my 1 year PET scan after CAR T on Thursday. It is magic! I had relapsed and there was a node on my duodenum that would not respond to chemo. So I was put on a CAR T clinical trial. 30 days later I was clear. I know the side effects can be scary but they are very low probability. They kept me in hospital for 2 weeks for observation. And they know how to fix whatever happens to go wrong. In my case that was nothing. If fact, I learned a new(to me) programming language when I was in there. So do what you need to do and get on with your life. Please take my best thoughts and best wishes for a prompt recovery with you!