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Polymyalgia Rheumatica (PMR) | Last Active: 5 days ago | Replies (22)
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I’m completely asymptomatic on 10 mgs of pred.
I’m sensitive to it and need less that most folks. But I’ve been trying to taper for a year and the PMR is worse than ever on 4.5 mgs. So I’m going back up.
I’m just terrified of the pred side effects. The weight gain, increased blood pressure, etc.
I have had spondyloarthritis most of my life but my PMR symptoms are different; much worse.
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"I have had spondyloarthritis most of my life but my PMR symptoms are different; much worse."
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I think a combination of things tends to have a cumulative effect. I could handle flares of uveitis with and without accompanying flares of reactive arthritis as long as I had enough Prednisone to take.
Having PMR on top made everything worse ... much worse. That was when I never had enough Prednisone to take. Now I don't take any Prednisone. Have you ever tried a biologic for Crohn's? Actemra allowed me to taper off prednisone relatively quickly. I suspect Kevzara might work for me too. Around 5 mg is when adrenals insufficiency from long term Prednisone use becomes a factor.