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Benign fasciculation syndrome (BFS)
Brain & Nervous System | Last Active: Feb 15 7:46am | Replies (431)Comment receiving replies
I know how you feel. A few months after having my colon removed due to cancer, I noticed my right index finger and thumb spasming together. I asked my Dr who sent me to a neurologist. He conducted nerve condition and MRI'S of brain and spine. Everything was normal so he diagnosed me with me with Myoclonus. The twitches soon spread all over my body. All blood test levels are normal. I was prescribed Cymbalta that had little effect, but did give me constant headaches. At this point I am still suffering with the twitches and spasms. I worry that it is the beginning of ALS. Two neurologist have dismissed my concerns. I guess i will just have to live with whatever happens.
Replies to "I know how you feel. A few months after having my colon removed due to cancer,..."
I also was very concerned that I had ALS. I have non stop fasciculations (twitching) in my legs and less frequent in other various spots. I already have a neurologist due to other problems so my PCP recommended seeing him. He did lots of tests and lab work and was unable to find the cause so he ordered extensive EMG testing which was just completed this past Tuesday. Yesterday he told me that I don't have ALS. This means that it is probably just BFS. What a relief!
Trust your doctor and don't worry. I know how stressful it is after going through this for several months.
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If u have had a brain MRI and nerve conduction studies that were normal its not als. Those would be abnormal. Weird, but I started taking a pinch of celtic salt by mouth once a day then drinking a glass of water after and it has tremendously reduced them. Celtic salt is mineral salt. Look it up . Starting to think its an electrolyte imbalance. And for you your colon holds alot of that, that the body needs and u just had a major surgery.