← Return to Burning mouth syndrome (BMS): Is this an autoimmune disease?

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@swamplady

Thank you for the story and journey Dianne. I appreciate you telling us this involved
trip to find an answer.
I too am going to try for the solution as you did.

Hugs and lots of luck
Robbie

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Replies to "Thank you for the story and journey Dianne. I appreciate you telling us this involved trip..."

Robbie I hope my experience helps you find your answer. After my scope I was in to see my doctor and told him I was hopeful but did not have biopsy report back yet from scope. I remember his words that he did not think reflux treatment was going to do anything to help my burning mouth. I saw my doctor again a month ago and this visit I was able to tell him results of biopsy report and that reflux treatment seemed to be really helping my burning and I had long periods of no burning at all. He was very happy for me that I was feeling better and my burning was much improved. Because of the Barrett’s my reflux treatment is long term. I can tell that the sucralfate liquid that costs my esophagus and stomach plays a big part in keeping my burning shut down. I can also tell that Nexium works better than Prilosec and that two 20 mg of Nexium twice daily works better that one 20 mg Nexium once daily and twice daily. I also have a triangle wedge that I use when sleeping to keep my upper body elevated to prevent reflux. I don’t smoke or drink. I only drink water. Since the scope and diagnosis I don’t eat spicy foods, sweets, fried foods, chocolate, fatty foods, etc that are bad for reflux. I am doing everything I can to heal my stomach and esophagus. I still read a lot. I was rereading my biopsy report last night and realized that bile reflux is also involved which ppi’s don’t help but sucralfate coats the stomach and esophagus from both acid and bile. I have an appointment next week with a specialist so will be discussing how to control bile reflux. I have fatty liver and in reading with fatty liver there is often bile reflux. Guess I am still learning!