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@linda7

I agree. Demonizing prednisone is not helpful. Some of us have tried every option to get off and have not been successful so far. What amazes me about prednisone is that it continues to work over time. Methotrexate and Kevzara were helpful initially, then provided very little benefit. And their side effects were much worse than prednisone at a lower dose, which for me has no discernable side effects or lab abnormalities. Trying to tough out the pain on a very slow taper has not worked for me. Pain just ramps up and eventually my ESR goes up. I am in my 4th year of PMR, at 5.5 mg prednisone. I still plan to taper off eventually when pain allows. I keep at a normal weight, eat a healthy diet and exercise as tolerated.

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Replies to "I agree. Demonizing prednisone is not helpful. Some of us have tried every option to get..."

As I mentioned. I have been on it for 10 years and credit it for giving me a good life and not getting blind because of the GCA.
Do I wish I were off it. Of course but meanwhile I will manage it and be very grateful to have access to it.
I was allergic to ACTEMRA and not interested in trying anything else since I know enough about prednisone to understand and trust it,

Who is demonizing prednisone? Certainly not me.

I agree. I am on dexamethasone.75