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Savvyme1…Blood test was necessary to diagnose the MG. I have had Ocular Myasthenia Gravis (OMG) 4 years now. 6 months ago finally went to Mayo. 90 mg Mestinon four times a day was the key. It has helped with the Ptosis in my one eye lid. After 4 years …and two surgeries to lift it, a neurologist at Mayo, Dr Madigan became my hero. Wanted me to use Mestinon on a strict regimen. Also Prescribed Glycopyrrolate to help minimize some of the diarrhea Pryidosigmine (Mestinon genetic) can cause.
Replies to "Savvyme1…Blood test was necessary to diagnose the MG. I have had Ocular Myasthenia Gravis (OMG) 4..."
I was diagnosed April 2022 so this will be three years this April and I had heard that if it had transitioned after three years we might be OK but it will stay. OMG. I am 75 now. So I take 2.5 Prednisone as well as the Mestinon two or three times a day are you able to take just mestinon and no steroid?
I had my I was removed two years ago at my neurologist suggestion even though it had Atrevor kid, she said some studies show the timer says part of the issue
One more thing when I hit the following incident fainted due to heat at the hospital they were lax about giving me my prednisone and Mestinon but fortunately I had some with me and treated myself still developed double vision, and when I saw my primary, she said they should've given me a dose of hydrocortisone when I had an incident like that. Has anybody else heard that?
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Thanks so much for all of the important and useful info.
You have encouraged me.