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Replies to "I only have ocular MG, and I was taking mestinon when I started to have a..."
Autoimmune Diseases | Last Active: Feb 18 2:19pm | Replies (42)
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I only have ocular MG, and I was taking mestinon when I started to have a symptom, but my neurologist said I should take it on a schedule.. I've switched, and that seems to help avoid issues.
Recently, I fainted when I was in a very warm area for an extended period of time and stressed as I was in a hospital with my brother who was getting his first chemo treatment. I believe this is one of the effects of Myasthenia gravis -does anybody else have issues with heat?
Replies to "I only have ocular MG, and I was taking mestinon when I started to have a..."
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I was diagnosed with generalized MG 15 years ago and definitely have issues with heat. The summers here in Florida are a big challenge for me. I keep lots of ice on hand, try to keep the thermostat around 74 to save on electricity and try to swim in the cooler hours. Sometimes just going from the car to my front door causes me to overheat. I lie down with an ice pack on my neck. It may take me a few hours to recover. Best wishes for handling mg.