Connect
← Return to Esophageal Lichen Planus
Discussion
Autoimmune Diseases | Last Active: Feb 15 1:16pm | Replies (113)
Comment receiving replies
Hello! I have oral lichen planus, as well as LP on my skin and vulva. A couple of years ago I was diagnosed with dysphagia. I’ve had episodes of esophageal spasms. I take 20 mg of baclofen 3x per day for the spasms. But now, I’m also getting uncomfortable pain behind the sternum and nothing helps. I’m also experiencing blurry vision at times, teary eyes, and a sensation in my eyes as if there’s a film of something coating my eyes. I don’t know what’s happening to me. I’m just finishing up a course of prednisone, using dexamethasone rinse for the oral LP, and tacrolimus ointment for the skin, but I feel that nothing is helping and I’m just getting worse!
Replies to "Hello! I have oral lichen planus, as well as LP on my skin and vulva. A..."
Connect
Hi, I'm sorry you're having such a difficult time with the ELP.
I have ELP, OLP and LP on my skin. I was diagnosed by a Gastroenterologist a couple of years ago.
He is a wonderful doctor!
I have had my esophagus stretched three times in the past year . The bands that are around the esophagus due to the ELP cause the esophagus to close.
I have never had pain under my sternum like you. My mouth is raw and I have sores. It's often very hard to eat. I have lost a lot of weight from all of this!
ELP is extremely rare. My doctor went to a convention for gastroenterologists in hopes to talk with a doctor that has had a patient with ELP.
Unfortunately, there was not a gastro doctor attending the convention that has a patient with ELP. There were gastroenterologists attending from all over the country.
You asked about medications. I take a strong medication twice a day for refluxing and burning in my esophagus. It really helps a lot!!!! I also use oral lidocaine gel. It helps but doesn't last long. I also use the dexamethasone rinse for ten days if I need it. This medication can only be used for ten days at a time. This is important. Have not taken steroids (dexamethasone) or the other meds you have. I try to avoid dexamethasone in pill form. I haven't have not had any so far. My general doctor wanted to put me on the it. I wouldn't take it.
The Lichen Planus on my skin has been in remission for a while. I do get a few sores but nothing like it was before. The remissions don't last forever unfortunately. I hope this helps you in some way. I'm here to talk to if you need. I really feel for you! Take care ❤️