I’m 62 years young and have worked out since my early 30’s. I do 45 mins cardio on my Peloton cycle and weights or Pilates classes after…4 days a week.
I was diagnosed with PMR in July of 2020 and have yet to successfully taper below 5mg, without the pain returning. Most recently in October of 24, I was down to 2.5mg and very liveable discomfort….until I began having pain in my right clavicle. I thought initially I had injured it, but I never had any recollection of doing so. After seeing my primary care, she said to give it another 6 weeks and stop doing weights and Pilates. It became worse during this time period and spread to my left side as well. I continued to only do my cardio, but no improvement. I was using a heating pad all day and finally decided in January to go back up to 10 mg on my prednisone. By day 3, I was seeing improvement and on day 5 it was all but gone.
I made an appointment to see my Rheumatologist, as I needed a refill on my steroids and she said it wasn’t my PMR? I had read online, that it’s not as common, to present in the clavicle…but it can. She still said no, and wants me to begin Kevzara, which I’m very opposed to. I’ve never had anything but normal markers, and Kevzara studies don’t show it working on people with normal inflammation markers. For now she has refilled my prednisone. I began to taper down from 10mg last week and guess what, my clavicle area is slowly beginning to have discomfort. I’m going to taper slowly, and hope it is a tolerable discomfort as I do.
I’m not going to stop working out, as it’s what keeps me mentally happy. I don’t really experience that much extra soreness from doing so.
What I will mention, is back n Fall of 2021, my Rheumatologist said that she has never seen so many cases of PMR in her career, since we all began vaccinating against Covid. I wonder if they are looking into that?
Thank you all for your support!❤️