Hello @lorrielynn, Welcome to Connect. I'm sure there are other members that can relate to your symptoms. You might want to scan through the following discussion started by @eileenb1022, while you wait for members with experience to respond.
-- Sjögren’s Syndrome: how do you manage the symptoms?
https://connect.mayoclinic.org/discussion/sjorgens-syndrome/
Has your doctor or care team offered any suggestions?

@lorrielynn I've noticed if I don't drink enough, I start the sweating, it was annoying so I had the doctor switch meds, so she put me on Cevelemine i woke up soaked from i so she put me back on Pilocarpine.(when covid hit i had to go to a factory to work for a few days and they took my temp and said I had fever I waited about 15 minutes and I was back to normal so I waited until I got to work to take it)
For the dry eyes I use a prescription eye drop Called Miebo and I use Refresh Gel drops at night

Plaquanil (hydroxychloraquine) did wonders for me. I also use Biotene dry mouth spray, and biotene gentle mint mouthwash. It's VERY important to have more frequent dental exams, as dry mouth promotes cavities. Also important is to get prescription toothpaste (higher fluoride content). Best wishes.

I'm only on IvIg with retuximab twice ayear. Medicare pays for most of it (it is expensive) and improvements are slow but they do come.

Hello, I also have this disease. Mine is secondary due to my Rheumatoid Arthritis. I found Pilocarpine to make me feel awful. Cold sweats and nauseas feeling. I do use Restasis Eye drops for help with the dry eyes. It is a prescription eye drop. My dry mouth is never ending. I do have a fluoride toothpaste prescribed from my dentist to help prevent cavities. I have also found chewing sugar free gum during the day helps with saliva production. Wishing you the best🌷

About five years ago I've lost my taste suddenly, was awful, but got used to it somehow, couldn't eat anything sweet, and lost about ten kilos. Then suddenly after about a year my taste come back! So hopefully your taste will come back too! My Dr think I might have Sjogrens syndrome. For my dry mouth I'll just drink water, and occasionally have spray.

gracenad, I am just starting out with secondary Sjogren's (I have had relatively mild lupus for 24 years), so I don't know how relevant what I use is. I use AloeCure's pure aloe juice for mouth dryness. I hold it in my mouth for awhile and then swallow. It seems to help with saliva production (I read about it on a medical post; that is how I got the idea to try it). It helps with the dry cough quite a bit too. I also drink something warm (even water) most of the day.

I have dry mouth that's more problematic at night. I'm usually up three or four times a night drinking water and using any one of these products -- Oasis Spray, Act Dry Mouth Gum, Act Lemon Lozenges, Epic Xylitol Mints and regular sugarless gum. My nighttime dry mouth will be worse if I eat foods that have tomato or barbeque sauce. I was able to use a Biotene Gentle Mouthwash for awhile but then it seemed too harsh. I tried the Gum Hydral Gel but that made me nauseous. Have you tried the OraCoat Xylimets? It's a stick-on disk that you use at night. Lately, I've had relief at night drinking Gatorade Zero or Bai. It seems as if any regimen I may discover, will only work for a short time. During the day, I use water, regular gum and the lozenges.
Hope this helps a little. I'm always searching for something that works well!!

I had a chemical reaction to the xylito melts.
No fun!

I was diagnosed with Sjorgens syndrome 14 yrs ago. I was also diagnosed with St4 NH Lymphoma 5 yrs ago. Thankfully, my chemo and immunotherapy worked and I have been in remission for 3 yrs now. My son is a Dr of Internal Medicine. He said there is now a medical correlation between Sjorgens and Lymphoma. When it's diagnosed now, he orders a cancer screening. I'm sharing this with others that have Sjorgens syndrome. I probably had cancer for many years and didn't know it. Please have yourselves checked for cancer. ❣️