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Does anyone use inhalation Tobramycin (Tobi)

MAC & Bronchiectasis | Last Active: 5 days ago | Replies (21)
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@fdixon63

Irene. I've dealt with pseudomonas A. for over 5 years and was treated off and on with Toby. Apparently the pseudo is colonized and the coughing I get when doing the Toby really wears me out so I'm currently off Toby. Not taking any oral antibiotics either. I'll do some reading about Cayston but wanted to send this question on to you. Does Cayston treat pseudo? Thanks much. Faye

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Replies to "Irene. I've dealt with pseudomonas A. for over 5 years and was treated off and on..."
irenea8 | @irenea8 | Feb 13 4:30pm

Yes Cayston is specifically for Pseudomonas Lung infections. Up to now it was only covered for people with Cystic Fibrosis but now I was told it is covered by medicare if you do not have CF but do have Pseudomonas. You can ask your Dr about it. People do find Toby very harsh and it can cause a lot of coughing and voice loss. In my case it quickly (5 doses) reduced my urine output so I stopped. Tobramycin is one of the worse for kidneys. So if you use it I would ask to have kidney function monitored. Cayston has fewer side effects than Toby or is less harsh.

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