Hi,
There being many types of neuropathy some have test for and some are subjective examinations by a proffesional. Usually a process of elimination.
Cheers
There are several different methods of testing for neuropathy and it's possible causes, but everyone is different. Some of us never get a real diagnosis because the cause can't always be determined.
It took 3 neurologists and 2 neurosurgeons over 10 years to tell me that I have idiopathic poly neuropathy in my feet. In other words, they can't determine it's cause because I'm not diabetic, and they've done every test out there, sometimes more than once, and the results were "normal".
So I've been told to just "deal with it", and to treat the pain as best I can. I'm already taking 3600 mg of gabapentin every day to dull the pain, but doing something like walking gets harder all the time.
I'm not ever going to get better, or have less pain. I also suffer from osteoarthritis in my hips, knees, neck, lower back, and right elbow, so my quality of life isn't the greatest.
Get a referral to see a neurologist and get the tests done , you might be lucky and get a straight forward diagnosis and a possible treatment option.
There are several different methods of testing for neuropathy and it's possible causes, but everyone is different. Some of us never get a real diagnosis because the cause can't always be determined.
It took 3 neurologists and 2 neurosurgeons over 10 years to tell me that I have idiopathic poly neuropathy in my feet. In other words, they can't determine it's cause because I'm not diabetic, and they've done every test out there, sometimes more than once, and the results were "normal".
So I've been told to just "deal with it", and to treat the pain as best I can. I'm already taking 3600 mg of gabapentin every day to dull the pain, but doing something like walking gets harder all the time.
I'm not ever going to get better, or have less pain. I also suffer from osteoarthritis in my hips, knees, neck, lower back, and right elbow, so my quality of life isn't the greatest.
Get a referral to see a neurologist and get the tests done , you might be lucky and get a straight forward diagnosis and a possible treatment option.
This helped me understand alot about my neuropathy. I also had emg. No findings and especially frustrating when your legs and feet are numb. I am heading to try for another MRI. Praying they find out what's pinching nerves in my back. God Bless and wish you the best of luck in your recovery
@fenn47
EMG/nerve conduction studies of upper/lower limbs, neuropathy bloodwork and small fiber neuropathy skin punch biopsy are good initial tests to have a neurologist do.
There are several different methods of testing for neuropathy and it's possible causes, but everyone is different. Some of us never get a real diagnosis because the cause can't always be determined.
It took 3 neurologists and 2 neurosurgeons over 10 years to tell me that I have idiopathic poly neuropathy in my feet. In other words, they can't determine it's cause because I'm not diabetic, and they've done every test out there, sometimes more than once, and the results were "normal".
So I've been told to just "deal with it", and to treat the pain as best I can. I'm already taking 3600 mg of gabapentin every day to dull the pain, but doing something like walking gets harder all the time.
I'm not ever going to get better, or have less pain. I also suffer from osteoarthritis in my hips, knees, neck, lower back, and right elbow, so my quality of life isn't the greatest.
Get a referral to see a neurologist and get the tests done , you might be lucky and get a straight forward diagnosis and a possible treatment option.
Hi again, that is what I was diagnosed with 8 yrs ago. Large fiber idiopathic polyneuropathy. I have kept very active, supplements and 300 mg of gabapentin. I also habe a vibrating plate to stand on and ultra ray red slippers. Dont know if any help. Like you said everyone is different and this disease is a BIG mystery. Best Wishes to you!
@fenn47
EMG/nerve conduction studies of upper/lower limbs, neuropathy bloodwork and small fiber neuropathy skin punch biopsy are good initial tests to have a neurologist do.
There are several different methods of testing for neuropathy and it's possible causes, but everyone is different. Some of us never get a real diagnosis because the cause can't always be determined.
It took 3 neurologists and 2 neurosurgeons over 10 years to tell me that I have idiopathic poly neuropathy in my feet. In other words, they can't determine it's cause because I'm not diabetic, and they've done every test out there, sometimes more than once, and the results were "normal".
So I've been told to just "deal with it", and to treat the pain as best I can. I'm already taking 3600 mg of gabapentin every day to dull the pain, but doing something like walking gets harder all the time.
I'm not ever going to get better, or have less pain. I also suffer from osteoarthritis in my hips, knees, neck, lower back, and right elbow, so my quality of life isn't the greatest.
Get a referral to see a neurologist and get the tests done , you might be lucky and get a straight forward diagnosis and a possible treatment option.
Thanks for these details. I hope the situation is stable for you, if not better.
Did you pain in the feet? Or somewhere else?
I have pain in the middle two toes of left legs. Interestingly the pain is there only when stand or walk. But I don't feel that pain when pressed by finger.
The MRI Radiologist says there is absolutely no indication of Morton's Neuroma - which could be the cause based on symptoms.
So today I have taken an appointment to do the Neuropathy test. Hopefully, it will give a better / clearer answer.
Regards, Ronald
Thanks for these details. I hope the situation is stable for you, if not better.
Did you pain in the feet? Or somewhere else?
I have pain in the middle two toes of left legs. Interestingly the pain is there only when stand or walk. But I don't feel that pain when pressed by finger.
The MRI Radiologist says there is absolutely no indication of Morton's Neuroma - which could be the cause based on symptoms.
So today I have taken an appointment to do the Neuropathy test. Hopefully, it will give a better / clearer answer.
Regards, Ronald
@ronivienna
I had a similar pain quite a few years ago. I am a hiker and I found 10 minutes into a hike I got the pain , which wouldn't abate until I stopped walking, took off my hiking boots. I never got a diagnosis but I started treating it like it was mortons neuroma.
Pi found gel toe spacers from the foot section of my local Shoppers Drug Mart a d wore them 5 minutes 3x/day. I soaked my feet in very warm water (about 25 minutes) every night before bed. I also bought small pads to put in my hiking boots and my shoes that were situated under the ball of the foot (that separated those toes). I found that info on "Inspire com". The name if these were "Dr Scholl's Orthotics for BALL OF FOOT PAIN". I also got them in the foot section of Shoppers Drug Mart (pharmacy).
I'll send this , then see if I can attach a picture of the gel toe spacers. I only use the gel spacers now when I have a bath..so I keep them there.
Betty
That was about 5-10 minutes for soaking feet before bedtime (and wearing the gel toe spacers for that time). I haven't had to do the full treatment for about 9 years, except I keep the gel spacers in the bathtub and put them on for about 5 minutes when I bathe. I think it increases the blood circulation to the feet when the toes are spread this way. I tackled the problems in several ways at the same time, but feel the main one was the Dr Scholes BALL OF FOOT pads. I'm still hiking.
No more pain.
Betty
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Hi,
There being many types of neuropathy some have test for and some are subjective examinations by a proffesional. Usually a process of elimination.
Cheers
-
Like -
Helpful -
Hug
2 ReactionsI had an EMG to determine the locations and severity of reactions to my legs and back
There are several different methods of testing for neuropathy and it's possible causes, but everyone is different. Some of us never get a real diagnosis because the cause can't always be determined.
It took 3 neurologists and 2 neurosurgeons over 10 years to tell me that I have idiopathic poly neuropathy in my feet. In other words, they can't determine it's cause because I'm not diabetic, and they've done every test out there, sometimes more than once, and the results were "normal".
So I've been told to just "deal with it", and to treat the pain as best I can. I'm already taking 3600 mg of gabapentin every day to dull the pain, but doing something like walking gets harder all the time.
I'm not ever going to get better, or have less pain. I also suffer from osteoarthritis in my hips, knees, neck, lower back, and right elbow, so my quality of life isn't the greatest.
Get a referral to see a neurologist and get the tests done , you might be lucky and get a straight forward diagnosis and a possible treatment option.
-
Like -
Helpful -
Hug
2 ReactionsThis helped me understand alot about my neuropathy. I also had emg. No findings and especially frustrating when your legs and feet are numb. I am heading to try for another MRI. Praying they find out what's pinching nerves in my back. God Bless and wish you the best of luck in your recovery
-
Like -
Helpful -
Hug
3 Reactions@fenn47
EMG/nerve conduction studies of upper/lower limbs, neuropathy bloodwork and small fiber neuropathy skin punch biopsy are good initial tests to have a neurologist do.
-
Like -
Helpful -
Hug
3 ReactionsHi again, that is what I was diagnosed with 8 yrs ago. Large fiber idiopathic polyneuropathy. I have kept very active, supplements and 300 mg of gabapentin. I also habe a vibrating plate to stand on and ultra ray red slippers. Dont know if any help. Like you said everyone is different and this disease is a BIG mystery. Best Wishes to you!
-
Like -
Helpful -
Hug
2 ReactionsYup, those tests all sound familiar.
@mrmacabre
Thanks for these details. I hope the situation is stable for you, if not better.
Did you pain in the feet? Or somewhere else?
I have pain in the middle two toes of left legs. Interestingly the pain is there only when stand or walk. But I don't feel that pain when pressed by finger.
The MRI Radiologist says there is absolutely no indication of Morton's Neuroma - which could be the cause based on symptoms.
So today I have taken an appointment to do the Neuropathy test. Hopefully, it will give a better / clearer answer.
Regards, Ronald
@ronivienna
I had a similar pain quite a few years ago. I am a hiker and I found 10 minutes into a hike I got the pain , which wouldn't abate until I stopped walking, took off my hiking boots. I never got a diagnosis but I started treating it like it was mortons neuroma.
Pi found gel toe spacers from the foot section of my local Shoppers Drug Mart a d wore them 5 minutes 3x/day. I soaked my feet in very warm water (about 25 minutes) every night before bed. I also bought small pads to put in my hiking boots and my shoes that were situated under the ball of the foot (that separated those toes). I found that info on "Inspire com". The name if these were "Dr Scholl's Orthotics for BALL OF FOOT PAIN". I also got them in the foot section of Shoppers Drug Mart (pharmacy).
I'll send this , then see if I can attach a picture of the gel toe spacers. I only use the gel spacers now when I have a bath..so I keep them there.
Betty
That was about 5-10 minutes for soaking feet before bedtime (and wearing the gel toe spacers for that time). I haven't had to do the full treatment for about 9 years, except I keep the gel spacers in the bathtub and put them on for about 5 minutes when I bathe. I think it increases the blood circulation to the feet when the toes are spread this way. I tackled the problems in several ways at the same time, but feel the main one was the Dr Scholes BALL OF FOOT pads. I'm still hiking.
No more pain.
Betty