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7% Saline Success Story that warmed my heart.

MAC & Bronchiectasis | Last Active: 3 hours ago | Replies (120)

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@cahcb4769

I’ve been using 7% all along and cough my guts out every morning. THEN I nebulize with an inhaled antibiotic called Arikares (Amikacin) more coughing. I will add the mucinex, just not sure which one to not suppress the cough. I’m a little annoyed with my pulmonologist since he sent me to see a lung surgeon last week to discuss a “minimally invasive lung procedure” to remove the mac (exacerbated by the bronchiectasis) and give me relief since the Mac keeps spreading. The surgeon said no way, I might not survive the surgery since it should’ve been done earlier. He checked a CT scan from May, 2022 and said the surgery could’ve been done then!! Why didn’t my pulmonologist tell me then?? I don’t want to go back to him now and just stick to my infectious disease doctor, I love him. Not sure why I need to see both. The Pulmonologist does nothing that the ID Dr, isn’t already doing. I’m really scared right now. Don’t know what to do. Along with the Arikares, I take Azithromycin and now Ethambutol since they don’t bother me, when I tried the big 3 I ended up in the hospital due to side effects.

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Replies to "I’ve been using 7% all along and cough my guts out every morning. THEN I nebulize..."

I would consider asking your ID doctor for a pulmonologist recommendation. One he/she has worked with who has a good reputation. You deserve a provider who is engaged in your well being. It sounds like your pulmonary provider was not looking at the whole picture. Trust your gut. Best of luck to you. I am sending good thoughts and prayers.