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@delavan

So far, so good. Thanks for the good wishes. I have read a great deal about the form of cancer I have and the suggested (but not always available) treatments for it. What I have found most helpful is the NCCN (National Comprehensive Cancer Network). It has an app called NCCN Guidelines for Patients Bladder Cancer. It is 102 pages in length. It is exceptionally well written, but does not contain unnecessary technical language. Every major cancer center in the U.S. is a member and subscribes to it protocols. The result is that the same diagnostic and treatment protocols are used at all of the 33 cancer centers that are members. Unfortunately, the physician protocols are not accessible to patients. That doesn’t mean every cancer center is equal to the others. But it does have an equalizing effect on the standard of care to be used by the treating doctors at the subscribing institutions.

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Hi, I also have taken the gem/doc treatments for NMIBC HG. I’ve had 15 treatments so far. I have to hold the gem for 90 minutes and the doc for 2 hours. Side effects varied at times. So far I haven’t had any new tumors. I deal with exhaustion but still am able to do a normal routine. The treatment burns and I causes muscle spasms and I sleep a lot after each treatment. I hope you do well on these treatments and that you have a very supportive spouse. Best to you!

Thanks for the NCCN website. I entered a book of info then I could not activate. Could be user error but I don’t think so. I will try again but is frustrating.

Thank you for the info