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Does anyone use inhalation Tobramycin (Tobi)

MAC & Bronchiectasis | Last Active: 5 days ago | Replies (21)
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@irenea8

I have been told that Cayston is now covered by Medicare for NCFBE (non cystic fibrosis BE). It is an alternative to Toby and may not have that side effect.

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Replies to "I have been told that Cayston is now covered by Medicare for NCFBE (non cystic fibrosis..."
fdixon63 | @fdixon63 | Feb 13 2:25pm

Irene. I've dealt with pseudomonas A. for over 5 years and was treated off and on with Toby. Apparently the pseudo is colonized and the coughing I get when doing the Toby really wears me out so I'm currently off Toby. Not taking any oral antibiotics either. I'll do some reading about Cayston but wanted to send this question on to you. Does Cayston treat pseudo? Thanks much. Faye

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lindabreathless | @lindabreathless | Feb 13 5:07pm

Thank, Irene. I didn’t know that Cayston is now covered by Medicare. I was turned down a couple of years ago when my doctor prescribed it. Do you take it? If so, is it helping?

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Beejenigma | @beejenigma | Feb 13 5:26pm

LOVE Cayston!!! My 02 sat went to 99% for the first time EVER! Yes, tobi does cause some lowered 02 sat but not bad.

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