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Myasthenia Gravis

Autoimmune Diseases | Last Active: Feb 18 2:19pm | Replies (42)

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@savvyme1

My Left Eye droops POTIS, caused by I believe MG. Why have no eye doctors or other dr’s called this to my attention?
I am wondering if a neurologist is the correct Dr for this analysis?

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Replies to "My Left Eye droops POTIS, caused by I believe MG. Why have no eye doctors or..."

Some go years to get a diagnosis. Had mine in 36 hours. You need an acetylcholine receptor test. (blood test) For sure a Neurologist. Sooner is better.

That is how my 0MG started and luckily, I happen to have an appointment with an eye doctor, who recognized the symptom and sent me for the blood test. I was shocked when I was positive for Myasthenia gravis. With a low-dose of prednisone and the Mestinon three times a day I am usually symptom-free, unless hit by stress then I can have some double vision.

Savvyme1…Blood test was necessary to diagnose the MG. I have had Ocular Myasthenia Gravis (OMG) 4 years now. 6 months ago finally went to Mayo. 90 mg Mestinon four times a day was the key. It has helped with the Ptosis in my one eye lid. After 4 years …and two surgeries to lift it, a neurologist at Mayo, Dr Madigan became my hero. Wanted me to use Mestinon on a strict regimen. Also Prescribed Glycopyrrolate to help minimize some of the diarrhea Pryidosigmine (Mestinon genetic) can cause.