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Replies to "Hi- new to MG and magic mestinon. Wondering if anyone has any suggestions about when to..."
Autoimmune Diseases | Last Active: Feb 18 2:19pm | Replies (42)
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Hi- new to MG and magic mestinon. Wondering if anyone has any suggestions about when to take it- at what symptom level. Sometimes I try to see if rest or something to eat will take care of symptoms, often doesn’t. Then I’m almost immobile with eyes closed and have to sit for a while til it kicks in.
Does waiting too long mean slower recovery? Is it better to take when symptoms first start? Thanks.
Replies to "Hi- new to MG and magic mestinon. Wondering if anyone has any suggestions about when to..."
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Be (bee) aggressive with this. It can kill you quickly. I have been taking mestinon for 5 years. I get up early so first dose is 6am. Next 10am then 1pm and 9pm. more causes diarreah. Some can take more but 4x daily is my limit. It is a good drug for limited MG problems. MG has put me in the Hospital 9 times, 5 of them in Neuro ICU. IV retuxamab, solaris, vyvvgart, IVIG. Pulse dose Steroids and oral Steroids. Plasma exchange. It has been 2 years now with no Hospital stays. All treatment was at the Philadelphia VA and U of Penn. Almost 10 million dollars. Much rehab to walk and talk. Have the number for the Neurologist to send the Pennstar Heliocopter. Not work for a local hospital. Now back to working 36 hours a week in my restoration shop. I will be 80 in may.