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Tymlos side effects

Posted by loh @loh, Jan 29 8:25am

Has anyone else had leg/back aches with Tymlos? I've been on it since October and lately I've had terrible aches in my legs and lower back, especially at night. Is that one of the known side effects? Thanks!

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gently | @gently | Feb 13 1:45am

jessbright,
maybe your Stanford physician would get you a sample Forteo pen to see if you really need to tolerate the pain (and to test their theory). Forteo is 20mcg, Tymlos is 80. Some who cannot tolerate Tymlos don't have any trouble with Forteo.
Tymlos has a preservative that can cause reaction.
Maybe 5 clicks is your max.
Tymlos leaves the body fairly quickly (24 hours) I'd guess that one or two days would tell you whether the medication is causing pain.
Forteo is 20mcg. Tymlos is 80mcg.

REPLY
2 replies
loh | @loh | Feb 13 7:07am
In reply to @gently "jessbright, maybe your Stanford physician would get you a sample Forteo pen to see if you..." + (show)
@gently

jessbright,
maybe your Stanford physician would get you a sample Forteo pen to see if you really need to tolerate the pain (and to test their theory). Forteo is 20mcg, Tymlos is 80. Some who cannot tolerate Tymlos don't have any trouble with Forteo.
Tymlos has a preservative that can cause reaction.
Maybe 5 clicks is your max.
Tymlos leaves the body fairly quickly (24 hours) I'd guess that one or two days would tell you whether the medication is causing pain.
Forteo is 20mcg. Tymlos is 80mcg.

Jump to this post

I just picked up the Forteo so will be starting on that soon. I had actually thought it had more than Tymlos not less, so this makes more sense. I also didn't know about the preservative possibly causing reactions so that's helpful. Hopefully this will be better!

REPLY
jessbricht | @jessbricht | Feb 15 11:28am
In reply to @gently "jessbright, maybe your Stanford physician would get you a sample Forteo pen to see if you..." + (show)
@gently

jessbright,
maybe your Stanford physician would get you a sample Forteo pen to see if you really need to tolerate the pain (and to test their theory). Forteo is 20mcg, Tymlos is 80. Some who cannot tolerate Tymlos don't have any trouble with Forteo.
Tymlos has a preservative that can cause reaction.
Maybe 5 clicks is your max.
Tymlos leaves the body fairly quickly (24 hours) I'd guess that one or two days would tell you whether the medication is causing pain.
Forteo is 20mcg. Tymlos is 80mcg.

Jump to this post

Thank you @gently. Those are really great suggestions. I also didn’t know about the preservative in Tymlos. I guess that’s why it can be out of fridge. Trying a sample pen of Fortreo is something I wouldn’t have thought to ask. I really appreciate the advice and experience here!

REPLY
jessbricht | @jessbricht | Feb 15 11:41am
In reply to @loh "I'm looking forward to comparing notes regarding Forteo. I was on Tymlos for 3 months but..." + (show)
@loh

I'm looking forward to comparing notes regarding Forteo. I was on Tymlos for 3 months but my doctor recommended switching to Forteo since I had terrible leg cramps. She has a generic version of Forteo for me to try for a month. Has anyone used that, and if so, I wonder how it compares to the regular Forteo. I seem to remember someone saying the generic had worse side effects (could that be possible?). I've been off Tymlos for a week and feel better, I'm dreading going back on a medication.

Jump to this post

@loh
It sounds like we’re at a similar place with Tymlos and considering switching to Fortreo due to leg pain. I’m not sure about the generic Fortreo having more side effects. But I’ll be really interested in how you do and if you feel better on it than Tymlos.

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