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Undifferentiated Pleomorphic Sarcoma: Anyone else want to share?
Sarcoma | Last Active: 1 day ago | Replies (110)Comment receiving replies
Recently received my biopsy showing Pleomorphic Myxoid spindle cell neoplasms. Reports suggest removal but that’s all I know at this point. Just doing my own research. I have a mass right above my clavicle bone that has been slowly growing over time. Mushy feeling had an ultra sound then CT Scan and then biopsy. My doctor hasn’t received the test results my chart sent me a email. I had my biopsy on 2/5/25 I go in on the 17th for an unrelated procedure but this will definitely be addressed at that time. So new to the dx really don’t know what is next.
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Being first diagnosed is such a hard and confusing place to be. I am glad you found this group. You have Sarcoma, Sarcomas are rare, you have to be seen by a Sarcoma specialist in a high volume Sarcoma Center. When my biopsy came back after an ultrasound with Sarcoma, my general practitioner immediately referred me to a Sarcoma Center. Insist on this or find one yourself. The Sarcoma Alliance has a list of all Sarcoma Centers in the U.S. They ordered more tests, a an MarI and a chest CT and a PET scan to see if the cancer was local or had spread ( this is called staging) and I had my first appointment with the Sarcoma team very soon thereafter. At this first appointment we agreed on a treatment plan and I started treatment soon after. Mine may not be a typical story: my PCP took my concern seriously and took the correct first step. I was diagnosed correctly. I saw my Sarcoma Team very soon after biopsy dx. Best wishes to you!