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Invisible illness how do you cope?
Autoimmune Diseases | Last Active: 4 days ago | Replies (25)Comment receiving replies
Hi I also just diagnosed with multiple immune diseases. It’s all so new to still learning about it’s very hard to understand how all theses connective tissues act. I also would appreciate any comment
Replies to "Hi I also just diagnosed with multiple immune diseases. It’s all so new to still learning..."
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You are not alone! I have Erles Danlos, POTS, RA, Sjorgens syndrome, Fibromyalgia, and peripheral neuropathy. I also had St 4 Lymphoma. Thankfully I am in remission but the treatment ruined what immune system I had. My Rheumatologist ordered 20 vials of blood and sent to Mayo for diagnosis. Some of this is genetic and my 31 daughter is having a lot of symptoms. She sees my Dr this week. All of these issues have overlapping conditions so it's confusing as to what immune issue is causing me problems. It's very frustrating. I also see a therapist who has really helped me deal with my medical issues. My advice - Keep on plugging away. Enjoy your good days and learn to self care when you feel bad. Laugh a LOT! ❣️