1. < Neuropathy

Likelihood that the pain will progress or stop?

Posted by Steve @stevebern, Feb 9 8:30am

I’ve been trying to figure out how to phrase this, and the best I can do is to ask… after 8 years, if the skin numbness is almost to my knee, and the pain is almost to my heel and keeps progressing up, will there be a point when the numbness and pain reaches my torso?

And, I once talked to a very elderly lady who said at some point the pain just stopped because everything was numb, inside and out… has anyone experienced this, or heard it from anyone else?

The numbness is now in my fingertips, which is a whole new level of devastation, knowing what happens next.

Interested in more discussions like this? Go to the Neuropathy Support Group.

pinoaktree | @pinoaktree | Feb 12 9:50am
In reply to @heisenberg34 "You sound a lot like me: never really sick, never spent a night in the hospital,..." + (show)
@heisenberg34

You sound a lot like me: never really sick, never spent a night in the hospital, athletic(tennis, cycling, golf, skiing, etc,). After a ski fall I experienced lower back pain. After a year and a half, I went to a neurologist who prescribed a cocktail of drugs that really helped. A year later I had a spinal cord stimulator implanted. Along with the meds I was almost pain free for about three years. Then the pain came flooding back for no apparent reason(2021). I had the pain pump implanted in 2023. Has neve given me any relief. I'm in the process of turning it down so I can have it removed. I never had any neuropathic pain until about six months ago. Then it began to creep into my feet, ankles, knees, thighs, and arms. EMG "diagnosed" it as Idiopathic Poly Neuropathy. In other words they don't know the cause. My meds barely touch it. Not sure where to go from here. Hope you can find something to help, I am seventy-seven but feeling a hundred. LOL.

Jump to this post

Have the same diagnosis. Mine seems to be associated with RA which had been under control for some 3 years. Why it popped up now , again no one seems to have answers. I had one practioner call it a "shoulder shrugger". I wasn't going to buy that.
I too tried accupuncture. He advised me that yes it could help but it would take time. (No definition of how long because of the slow rate of nerve regeneration.) Yes I did seek releif but it was fleeting. I was OK with that as I planned my week for activities following treatmen whenburning.
. I knew I would feel better.
One blood test revealed high levels of B6 Stop taking any supplments with that vitamin in it.
It was recommended I takle ALA, 250 mg, 3 times a day.

Bottom line, I am beginning to feel better. Pain is now tolerable but I find weather changes do intensify . Keep going and try and be patient.

REPLY
View MoreView Less
Please sign in or register to post a reply.