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Rising PSA years after radical prostatectomy
I am 60 years and I had radical prostatectomy on 23rd Nov 2018. I was told out of the 15 lymph nodes taken only one was affected less than a millimetre. It was Gleason score 7B with PSA around 13 at time of surgery but 11 at time of diagnosis in June 2018.
The PSA been fluctuating between 0.09 and 0.18 since surgery on 23rd November 2018
I have no incontinence as well as Erectile dysfunction. I take hypertension medication – Norvask Amlodipine 5mg daily and Cetirizine 5mg for allergy. Below are some of the test results. I have many of these test results – a few below
Jan 2019: 0.11
April 2019: 0.11
June 2019: 0.09
August 2019: 0.12
December 2019: 0.12
April 2020: 0.12
August 2020: 0.11
October 2020: 0.17
December 2020: 0.15
February 2021: 0.18
I am worried the cancer may be returning or might have spread. I met my doctor today and expressed my concerns. He has agreed to refer me to the hospital where I had the surgery. Any suggestions based on this brief history?
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The stuff I've read is that you're not in that bad of a shape.
That it's gone to your bone isn't good of course.
But that there isn't a lof it, is very good.
Apparently your Docs think it's still something they can treat with localized SBRT like radiation therapy.
My guess is if they thought otherwise they'd already be loading you up with ADT ARPIS and PARPIS.
"It's always the darkest before the dawn."
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1 ReactionThanks for the update, using this group support along with talking with others helps reduce my stress and anxiety.
I would like feedback also on diet and exercise...most part I am doing good on exercise but still from time to time eat junk/fast foods straying away from low fat diet.
In addition I still have incontinence (had surgery 2021), my understanding at this stage I will always have it but I have been working on pelvic, Kegels, core tightening, and going to restroom more and seeing much improvement to 2 pads per day along with going back to a therapist....any suggestions on this topic.
Hey @urdblfs
A couple quick thoughts...
"I would like feedback also on diet and exercise...most part I am doing good on exercise but still from time to time eat junk/fast foods straying away from low fat diet."
If it's really just from "time to time", meaning not to often on occasion, well, you gotta live and enjoy life a little, otherwise what's the point. My weakness is at night I graze, crackers pretzels that kind of thing. All things in moderation right?
I always thought of it in terms of negating all that work in the gym if I ate junk food. Maybe that'll help a little, it does help me put the pretzel down.
"I have been working on pelvic, Kegels, core tightening, and going to restroom more"
All good things. Having said that though, have you tried to get the doc to prescribe some sort of specialized PT for this? If I was this far out, and otherwise healthy, I might get a little more aggressive on treatment. I'm no doc (and didn't sleep at a Holiday Inn last night....) but if you're down to two pads a day, you seem really close to fully continent. I might look for some help to get over that line.
That wasn't something I was aware existed prior to reading all the experiences of the kind folks on here. If I had known it was available, I'd have done it. Luckily now, there's no need, but it's in my back pocket should there be a slide in the wrong direction.
Best of luck to you!
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