Hello Hopeful33250. Thank you so much for your replies! I will keep you in my prayers and hope that you have had your last NET.

I’m doing ok. It’s been a little difficult trying to understand all of the medical opinions and lack of standard practices for monitoring going forward. I have seen two different oncologist, one was a surgeon/oncologist at MD Anderson and the other a local oncologist. I have also seen three different gastroenterologist. It appears to be no real standard guidance for how to monitor me going forward. They have their own recommendations, but they all seems to vary. One doctor says I should have scans, bloodwork and endoscopies, while the other says to just have endoscopies. They also differ on the recommended time intervals for monitoring, but agree that I will need to be followed for the rest of my life. I just want to try and stay on top of it so that if it does reoccur, it will be found in time to remove it.

I have had stomach issues and IBS for about the last 37 years. It started with a bleeding ulcer and a high acid stomach. I have been on stomach meds for that same time period. My doctor put me on PPI’s as soon as they were available. Now the doctors are saying that there is some, in the medical community, think that long term use of PPI’s could contribute to causing NETs. I have tried over the years to stop taking them, but I can’t function well with the resulting stomach issues. My stomach is always irritated, even with the PPIs, but without them I could get ulcers and esophagus damage.

I just need to figure all of this out and move forward with living!

Have you ever been on PPI’s? I was just wondering why you had routine endoscopies.

I hope you are having a wonderful day! May God bless you.